Conference

As more women with lcFAODs are now of child-bearing age, questions of safety have arisen. Dr. Grunert will discuss an international study, in which scientists and clincians collected data on […]

Dr. Vockley will share current treatments and potiential therapies in the FAOD community, with our yearly, "FAOD Updates!"

New genetic therapies are under development for many rare diseases, and some have been approved by the FDA. However, none are approved for FAOD. This presentation will share ongoing research […]

Patients and Caregivers from the FAOD community will have time to share their wisdom and lessons learned during their journey. They will tackle pre-prepared questions, and select questions during the […]

When a child is diagnosed with an FAOD the world of a caregiver drastically changes. This presentation will draw on the insight of both a long-standing geneticist in the FAOD […]