MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Calendar of Events
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Expert Series: Leigh syndrome: A factory for making viruses?
Expert Series: Leigh syndrome: A factory for making viruses?
Previously, the McGuire group at NIH reported that children with mitochondrial disease in general experience serious infections which may last longer than expected. Cells impacted by mitochondrial disease present a unique environment that may be facilitative for viral replication. This relationship between compromised mitochondrial function and increased viral activity suggests a complex interplay where cellular […]
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
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FAOD Monthly Evening Support Call
FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
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Our Space: A space for young adults with Mito and FAODs to connect and network
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […]
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
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INFORM Lecture Series
INFORM Lecture Series
The lectures from INFORM, similar to our Expert Series presentations, will be held every month on the Third Monday, until Jun 17, 2024. If you are interested in joining this presentation, click the button below to register! Take a look at the two speakers presenting on Monday, January 15th, Andrea Pereyra and Yudong Wang If you […]
Round Table Discussion: Strength and Resistance Training- Core Concepts and Considerations
Round Table Discussion: Strength and Resistance Training- Core Concepts and Considerations
Join Dr. Pamela Tucker (DPT, PT) in a round table discussion regarding the benefits of a consistent strength-building program, a review of essential exercises, and education on modifications to popular exercises to reduce the risk of injury. Bring your questions and join the discussion to review how to start progressing your exercises to meet your […]
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Alaska MitoSocial
Alaska MitoSocial
Join us for the Alaska MitoSocial on February 20th. This virtual event will be from 6-7pm ASKT (10-11pm EST). Register for the Zoom below, or email soozi@mitoaction.org for more information and questions!
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Monthly MitoChampions Meeting
Monthly MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. Interested […]
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FAOD Monthly Afternoon Support Call
FAOD Monthly Afternoon Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
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Wondering Wednesdays: Ask the Genetic Counselor
Wondering Wednesdays: Ask the Genetic Counselor
Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone.
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Expert Series: Modeling mitochondrial diseases with patient-derived stem cells and brain organoids
Expert Series: Modeling mitochondrial diseases with patient-derived stem cells and brain organoids
In this talk, Dr. Alessandro Prigione will discuss how stem cells are generated from patients to derive models of the brain (such as neurons and brain organoids). He will further discuss how they use these models to investigate the mechanisms causing mitochondrial diseases and to set up pipelines to screen for drugs to be repositioned for […]
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
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