For adult patients with mitochondrial disease, taking control of your disease and being an advocate for yourself can make all the difference on your journey with mito. There are several ways to educate yourself when it comes to your care and treatment that can have a big impact on your life.
- Learn to be your own advocate by communicating effectively with your medical team members.
- Don’t be afraid to share information with your primary care physician, especially when working with a non-mito specialist; take advantage of our website resources or share a copy of our New Patient Kit.
- Building a medical team experienced with complex patients, preferably a Mito-knowledgeable team, can make all the difference.
- Always voice your questions or concerns with medical staff and provide them with as much information as possible – often times writing down questions prior to appointments can help to ensure you address everything you need to.
- Lastly, surround yourself with a support system to share experiences and offer advice in difficult situations and never forget that MitoAction is here to help!