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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Energy Walks

MitoAction Energy Walk — Alvin, TX

Join us to raise awareness and funds for mito—one step at a time!

Saturday, August 15, 2026

Living Stones Church
Victory Ln #1407
Alvin, TX 77511

Gather your team and get ready to go for a walk while raising awareness for mitochondrialRelated to the mitochondria. disease! Whether you walk as an individual, create a team or volunteer, you’re making a difference in the lives of patients and families who rely on us. Your fundraising helps MitoAction change the future of health for every mito patient, here and around the world.

Whether you walk as an individual, create a team, or volunteer, you’re making a difference in the lives of patients and families who rely upon us. This family event offers support, friendship, and fun for everyone!

Register Now

Schedule of Events

7:30 am – Registration
8:30 am – Welcome and Opening Ceremony
8:45 am – Kid’s Fun Run Begins
9:00 am – Walk/Run Begins
10:30 am to 12:00 pm – Awards, refreshments, and FUN!

Honoring Steven’s Legacy

Energy Walk Texas – Steven's Story

Steven’s story is one of quiet strength, deep love, and a resilience far beyond his ten short months. From the very beginning, his journey was marked by complexity, born with agenesis of the corpus callosum and later diagnosed with Leigh syndrome caused by a rare EARS2 gene mutation. His days were often filled with hospital stays, medical interventions, and challenges that no child should have to endure. And yet, through it all, Steven’s presence brought a sense of calm and meaning to those around him.

Those who cared for him saw something special. His nurses affectionately called him “Mr. President”, a reflection not only of his name, Steven Cole Swango, but of the quiet dignity he carried. In the midst of monitors, treatments, and uncertainty, there were also moments of tenderness, being held close, the softness of his coos, and the deep connection he shared with his family. These are the moments Miranda holds onto, the ones that defined who Steven truly was.

On June 25, 2025, Steven passed peacefully in his mother’s arms, surrounded by love. While his time here was far too brief, his impact is lasting and profound.

Today, Steven’s legacy lives on through action. What began as heartbreak has become purpose. Miranda and her family now honor him by bringing people together, to raise awareness, to support other families walking similar paths, and to push forward hope for better understanding, earlier diagnoses, and meaningful treatments for mitochondrial disease.

Each step taken in Steven’s name is a reminder: his life mattered, his story matters, and through this community, his light continues to shine.

Thank You Sponsors and Donors!

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Upcoming Events

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Apr 15
3:00 pm - 7:00 pm

13th Annual Matthew Harty Mito Classic

Apr 15
7:00 pm

MitoChampions Meeting

Apr 16
6:00 pm - 7:00 pm

CPEO & Me

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Expert Series

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Apr 16
7:00 pm - 8:00 pm

Expert Series: Direct to Consumer Genetic Testing 101

Apr 17
12:00 pm - 1:00 pm

Expert Series:  Eat Smart, Power Strong: Your Mitochondrial Nutrition Grade

View Calendar

Last Presentation

Expert Series: Direct to Consumer Genetic Testing 101
Presented March 15, 2026

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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