World Rare Disease Day

“Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.”

Rare Disease Day is a global movement dedicated to advancing equity for people living with rare diseases, championing fair access to diagnosis, care, treatment, and social opportunities worldwide.

Since its launch in 2008, Rare Disease Day has helped unite a powerful international community that spans diseases, borders, and backgrounds. Diverse in experience yet shared in purpose, this community continues to raise awareness, drive change, and amplify the voices of those affected by rare disease.

Click HERE to learn more about Rare Disease Day!