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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Expert Series: Leigh syndrome: A factory for making viruses?

Jan 9, 2024

Previously, the McGuire group at NIH reported that children with mitochondrial disease in general experience serious …

[Read more...]

cell function, expert series, leigh syndrome, viruses

Expert Series: Stride Study for PMM patients

Dec 20, 2023

Join MitoAction and Dr. Alex Dorenbaum, Chief Medical Officer at Reneo Pharmaceuticals, as they discuss the Stride Study …

[Read more...]

expert series, mito update, Reneo

2024 Mito Town Meeting

Nov 27, 2023

The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the next 12 …

[Read more...]

expert series, mito town meeting, research, Town Meeting

Expert Series: Ceramides: The Unmasked Drivers of VLCADD-Induced Heart Failure

Nov 15, 2023

Despite advances in newborn screening and treatment of fatty acid oxidation disorders, patients with very-long-chain …

[Read more...]

ceramides, expert series, faod, VLCADD

Expert Series: Immune Cell Function in Mitochondrial Disease

Nov 3, 2023

Immune dysfunction is increasingly appreciated in mitochondrial disorders. Join Dr. Melissa Walker to review the small …

[Read more...]

expert series, immune cell function, immune dysfunction, primary mitochondrial

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Upcoming Events

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May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 11
All day

Celebrate Mother’s Day

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
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(888) 648-6228
info@mitoaction.org

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