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Resource Type: Expert Series


7 Simple Strategies for Sibling Support

Siblings of children with disabilities play important roles in their families, and often experience similar concerns and opportunities as parents. This session will present some common issues that siblings...


The Menstrual Cycle as a Vital Sign in Navigating Rare Disease

Join MitoAction and board-certified family physician and Adjunct Associate professor of medicine at Georgetown University, Dr. Marguerite Duane, to explore the impact of the female menstrual cycle as a...


Lessons Learned from the COVID-19 Pandemic in Children with Disorders of Mitochondrial Metabolism

The impact of the COVID-19 pandemic on medically fragile populations, who are at higher risk of severe illness and sequelae, has not been well characterized. Viral infection is a...


CDC New Opioid Guideline – What This Means for the Mito Community

Learn about the new draft CDC Opioid Guideline, how it impacts the mito community and how you can raise your voice to address important topics still to be decided...


MELAS Spectrum Disorders and Sonlicromanol: Progress Update

Join MitoAction and Dr. Jan Smeitink, CEO of Khondrion for our our March Expert Series presentation. MELAS spectrum (m.3243A>G) disorders belong to the most frequently encountered group of primary...


Sick Day & Emergency Protocols: Helpful & Potentially Harmful

Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the importance/challenges of protocol letters within the mitochondrial disease...


GAII: Finding the Balance

Join MitoAction and Metabolic Dietitian, Casey Burns to learn tips on navigating diets and finding the balance with GAII. We will tackle topics related to nutrition, balancing low-fat/low-protein diets,...


2022 Mito Town Meeting

The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the next 12 months! We will...


You Won’t Miss the Fat – Cooking One Meal for the Whole Family

Join FAOD parents Beth Folcher and Stephanie Harry to explore nutrition and substitutions for stress-free meal-planning that’s inclusive of the whole family. You do not have to sacrifice flavor...


The Mito Disease Drug Development Journey

Join Dr. Matt Klein from PTC Therapeutics , MitoAction and Cure Mito for an exclusive webinar discussing the history of clinical research in Leigh Syndrome, the evolution of PTC-743...