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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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2024 Mito Town Meeting

Nov 27, 2023

expert series, mito town meeting, research, Town Meeting

Expert Series: Ceramides: The Unmasked Drivers of VLCADD-Induced Heart Failure

Nov 15, 2023

Despite advances in newborn screening and treatment of fatty acid oxidation disorders, patients with very-long-chain acyl-CoA dehydrogenase deficiency (VLCADD) continue to suffer from heart failure. Marie Norris will discuss her […]

ceramides, expert series, faod, VLCADD

Expert Series: Immune Cell Function in Mitochondrial Disease

Nov 3, 2023

Immune dysfunction is increasingly appreciated in mitochondrial disorders. Join Dr. Melissa Walker to review the small number of known immune manifestations of specific primary mitochondrial disorders as well as emerging […]

expert series, immune cell function, immune dysfunction, primary mitochondrial

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 1, 2023

Having a better understanding of what things are associated with LCHADD retinopathy can provide insight towards developing treatment. During this presentation, Dr. Gillingham will provide an update on the current […]

expert series, LCHADD, LCHADD Retinopathy, treatment

Expert Series: Understanding Upcoming MCADD Trials

Oct 26, 2023

There are two new MCADD trials that have started in recent months. One explores the use Dojolvi (triheptanoin) and the second the use of phenylbutyrate with MCADD patients. Join MitoAction […]

clinical trials, expert series, faod, MCADD, new studies, opportunities, potential solutions

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Upcoming
Events

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Dec 7
December 7 - December 15

Hanukkah

Dec 12
8:30 pm - 9:30 pm Event Series

Our Space: A space for young adults with Mito and FAODs to connect and network

Dec 14
8:15 pm - 9:30 pm Event Series

FAOD Monthly Evening Support Call

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Expert
Series

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Upcoming Presentations

Jan 12
12:00 pm - 2:30 pm

2024 Mito Town Meeting

View Calendar

Last Presentation

Expert Series: Ceramides: The Unmasked Drivers of VLCADD-Induced Heart Failure
Presented November 15, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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