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Resource Type: Expert Series


2023 Mito Town Meeting

The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the next 12 months! We will...


Wondering Wednesdays: Ask the Genetic Counselor

MitoAction is excited to announce that we are starting a new series called, “Wondering Wednesdays: Ask the Genetic Counselor” every 4th Wednesday of the month. Genetic Counselor and Mito...


GAII: Finding the Balance

Join MitoAction and Metabolic Dietitian, Casey Burns as she discusses tips on navigating diets and finding the balance with GAII. We will tackle topics related to nutrition, balancing low-fat/low-protein...


Grief and Mito

The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change,...


Community Update: Fatty Acid Oxidation Treatments & Growing Options

Dr. Jerry Vockley provides updates on the latest in therapy development for the FAOD community at the 2022 International Metabolic Conference.


Transition Tips for Patients and Parents

Join Dr. Jordan Kemere as she discusses different components of healthcare transition including finding adult physicians, insurance changes, and transitioning to adult life. She will offer practical tips to...


Navigating the Financial Minefield of Genetic Testing

  There are so many misunderstandings and misconceptions of genetic testing. Join Dave Keane as he clarifies these issues, and provides tools to empower patients to participate in their...


Cardiac Complications with LCHADD

Cardiac complications were often identified in symptomatic infants and children before newborn screening. Cardiac dysfunction can re-emerge or present for the first time during metabolic crisis at any age....


LCHADD Retinopathy

The underlying cause of LCHADD retinopathy is not fully understood. This presentation will look at the research that identifies the cell in the eye that is initially affected and...


Medical Child Abuse and Mito: Safeguarding your Family

A child who has a diagnosis of mitochondrial disease has a significantly higher risk of being removed from the home by Child Protective Services (CPS).   Attorney Beth Maloney...