This topic is dramatically important to the parents of children with complex gastrointestinal presentations of mitochondrial disease. MitoAction brings this topic to our Mito community today in response to the increasing number of accusations of child abuse and Munchausen by proxy that have been placed upon many parents of children struggling from the devastating symptoms of mitochondrial disease.
Join us this month as we celebrate “International Mitochondrial Disease Awareness Week” across the globe and join efforts to improve awareness, acceptance and understanding of mitochondrial disease and the impact that the condition has on children and adults.
Dr. Flores will discuss “Munchausen by proxy and the intestinal failure patient” and take a candid look at cases where children with mitochondrial disease and intestinal failure caused the family’s ability to care for the child to be called into question. Dr. Flores will address the challenges that face both physicians and parents when caring for these patients.