Parents, Stress and Coping with Mitochondrial Disease

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  • Do you have a child with mitochondrial disease (known or suspected)?
  • Are you stressed?
  • Are you tired?
  • Do you feel like no one, including friends and even your own doctors, really understands what it’s like to be the parent of a child with Mito?

Brenda Senger RN MA, is a nurse and parent of a young child with Mito. Her goal is to collect information in order to share the experience of parents coping with the unique stressors of having a child with mitochondrial disease, and to share those in an academic way with healthcare providers in order to help parents have better support and resources.

Learn about the experience of coping for parents with kids with complex medical conditions and mitochondrial disease, what unique stressors face us as parents and families, and what the current research says about how we cope.

About The Speaker

Brenda Senger RN, MA is a PhD candidate at Washington State University School of Nursing. Brenda is an educator, a nurse, and parent of a child with mitochondrial disease. Brenda’s goal is to identify stress and coping in parents of children with Mito in order to educate health care professionals and provide adequate support to parents of kids with Mito. By participating in the survey (link above), you can be a part of helping healthcare providers understand the unique stressors facing parents of kids with mitochondrial disease.

Date: 02/01/2013
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