- Do you have a child with mitochondrial disease (known or suspected)?
- Are you stressed?
- Are you tired?
- Do you feel like no one, including friends and even your own doctors, really understands what it’s like to be the parent of a child with Mito?
Brenda Senger RN MA, is a nurse and parent of a young child with Mito. Her goal is to collect information in order to share the experience of parents coping with the unique stressors of having a child with mitochondrial disease, and to share those in an academic way with healthcare providers in order to help parents have better support and resources.
Learn about the experience of coping for parents with kids with complex medical conditions and mitochondrial disease, what unique stressors face us as parents and families, and what the current research says about how we cope.