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Care Management


Meet Devin the Genetic Counselor and Mito Patient

  ENERGY IN ACTION – EPISODE 063 Devin Shuman is a Genetic Counselor based outside of Seattle, Washington. At age 16, she was diagnosed with Mitochondrial Depletion Syndrome (MDS)....


Get Connected with MitoAction Mobile

Join MitoAction’s CEO, Kira Mann and Karen’s CEO, Dave Williams for a step-by-step tutorial to get started using the MitoAction Mobile App platform.  This tool will help you manage...


Multiple Specialists

MitoAction meeting discussing multiple specialists


Palliative Care and Hospice

Dr. Pat O’Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease. This month’s meeting is held in...


Caring for the Whole Patient

For someone who lives with mitochondrial disease, understanding the “big picture” is important. Dr. Koenig will explore the importance of caring for the whole patient when managing mitochondrial disease....


IV (Venous) Use: Access and Complications

Learn all about use of IV’s for hydration, nutrition and medications. When are they used? How? And what are potential complications? Mona Inocentes from Thrive RX will discuss: Differences between 3...


Interpreting Common Lab Tests for Mitochondrial Disease

Dr. Mark Korson from Tufts Floating Hospital for Children gives a “crash course” in interpreting lab values! Most patients with mitochondrial disease have faced a page of test results...


Sick Protocol for Mito Patients with Dr. Korson

What should you do when you or your child is sick? Being sick, even with a cold or a simple virus, is tough for most children and adult Mito...


Get More from Every Doctor’s Appointment

It’s time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get...


2014 Mito Awareness Rally

We had a wonderful Awareness Rally on Friday, Sept. 5, featuring people who are doing amazing things to raise awareness about mitochondrial disease. Each speaker brought great ideas to...