ENERGY IN ACTION – EPISODE 063 Devin Shuman is a Genetic Counselor based outside of Seattle, Washington. At age 16, she was diagnosed with Mitochondrial Depletion Syndrome (MDS)....
Join MitoAction’s CEO, Kira Mann and Karen’s CEO, Dave Williams for a step-by-step tutorial to get started using the MitoAction Mobile App platform. This tool will help you manage...
Dr. Pat O’Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease. This month’s meeting is held in...
For someone who lives with mitochondrial disease, understanding the “big picture” is important. Dr. Koenig will explore the importance of caring for the whole patient when managing mitochondrial disease....
Learn all about use of IV’s for hydration, nutrition and medications. When are they used? How? And what are potential complications? Mona Inocentes from Thrive RX will discuss: Differences between 3...
Dr. Mark Korson from Tufts Floating Hospital for Children gives a “crash course” in interpreting lab values! Most patients with mitochondrial disease have faced a page of test results...
What should you do when you or your child is sick? Being sick, even with a cold or a simple virus, is tough for most children and adult Mito...
It’s time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get...
We had a wonderful Awareness Rally on Friday, Sept. 5, featuring people who are doing amazing things to raise awareness about mitochondrial disease. Each speaker brought great ideas to...