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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Energy in Action Podcast Episode 159: How One FDA Meeting Gave the MELAS Community a Voice

Jun 3, 2026

In this episode of Energy in Action, Marcy Young is joined by PFDD panel participants Gordon, Jackie, and Cheryl …

[Read more...]

energy in action, mito community, podcast

Energy in Action Podcast Episode 158: Why Sleep Matters More Than You Think with Mitochondrial Disease

May 26, 2026

In this episode of Energy in Action, Marcy Young welcomes back Dr. Mark for a practical and deeply informative …

[Read more...]

energy in action, podcast, sleep

Energy in Action Podcast Episode 155: Why Mito Care Is Finally Changing

Apr 9, 2026

In this episode of Energy in Action, she shares the path that led her from growing up in Colombia—where she was first …

[Read more...]

energy in action, mito care, podcast

Energy in Action Podcast Episode 137: Navigating CPEO: Talia’s Search for Answers, Care, and Community

Jul 2, 2025

Together, Marcy and Talia unpack why securing genetic testing, specialty care, and even a simple referral can feel like …

[Read more...]

cpeo, energy in action, podcast

Energy in Action Podcast Episode 134: The Fight for Educational Rights: What Mito Families Need to Know

May 21, 2025

In this urgent and illuminating episode, Marcy Young sits down with Kuna Tavalin, Senior Policy and Advocacy Advisor at …

[Read more...]

energy in action, podcast, service dog

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Upcoming Events

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Jun 11
11:00 am

POLG Support Call

Jun 11
8:15 pm

FAOD Support Call

Jun 12
12:00 pm

Mito Weekly Support Call

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Expert Series

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Jun 18
12:00 pm - 1:00 pm

Expert Series: Understanding the potential of a “CPK Meter”

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Last Presentation

Expert Series: Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails
Presented May 12, 2026

P.O. Box 310
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