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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Energy 4 Education

Mito and the Education System

Teachers, parents and students, with the guidance of the child’s physician, can work together as a team to promote the best learning experience possible for children with mito attending school.

Young girl sitting at her desk in elementary school. Elementary school presents unique challenges for kids with mitochondrial diseases and their parents.

Children with mito CAN attend school with supportive tools that can help a student maintain health and energy throughout the day.  Teachers, parents and students, with the guidance of the child’s physician, need to work together as a team to promote the best learning experience possible.

MitoAction is thrilled to offer resources such as the Energy 4 Education video, as a means to help parents, students and educators understand and convey the many variabilities and complexities of educating a child with mitochondrialRelated to the mitochondria. disease.  Educators will truly appreciate the insights shared by students, families and other teachers who have established strong relationships while working together to make educational opportunities accessible.

MitoAction also offers Sample IEP’s and other templates, symptom checklists, healthcare plans, etc., which may help you as a parent advocate for your child’s needs in their academic environment.  Another very useful tool is our MitoAction MyMito App that will allow every member of your child’s care team, including teachers, school nurses or counselors, to participate in a coordinated care environment and share meaningful information and updates about your child right from their phone. As always, these are possible options that can aid parents and teachers in understanding that children with mitochondrial disease do attend school, do suffer from extended absences and can have accommodated schedules,.  When everyone communicates and works together, this enables our mito students to have successful school experiences with proper supports, accommodationsChanges that remove the barriers to learning. They can also change how and what the children is expected to learn and know. and modifications throughout their academic careers.

Additional Resources

Sample IEP Letters
Home Schooling
MyMito App
Energy 4 Education
Advocating for Your Child at School – Global Genes Toolkit

Upcoming Events

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May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

May 16
12:00 pm

Weekly Support Call

May 20
All day

Clinical Trials Day

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Expert Series

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May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

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Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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