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MitoAction Blog

by Cristy Balcells

Many children and adults with mitochondrial disease experience significant gastrointestinal or digestive issues as part of their daily disease challenges. When considering the pros and cons of a feeding tube and struggling to identify the best diet for dysmotility, many parents, patients and families are confused by all of the possibilities. Join us this month on December 4th, 2015 with Thrive RX Clinical Specialist Kristen R. Roberts PhD RD to learn more about diet, dysmotility and tube feeding.

Topics for this presentation include:

Nov 23, 2015 Comments: 0
by Cristy Balcells
What is Mitochondrial Myopathy? Learn more with Dr. Bruce Cohen on November 20th


Nov 10, 2015 Comments: 0
by GingerD


1 girl + 1 community = big differenceBrionna & family have right equation to raise awareness

Never underestimate the power of one: one girl, one mom, one family, one community, one cause.

Nov 06, 2015 Comments: 0
by Cristy Balcells
Mitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial dysfunction, cell damage and organ dysfunction. Join us this month with Dr.
Sep 17, 2015 Comments: 1
by Cristy Balcells
What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient.
Sep 02, 2015 Comments: 0
by Cristy Balcells
It's that time of year ... summer comes to a close and children everywhere are going back to school!
Aug 20, 2015 Comments: 0
by Christine Cox

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding concerning the distribution of products from compounding pharmacies.  The proposed Memorandum of Understanding would substantially limit the ability of compounding pharmacies to distribute compounded prescriptions across state lines.  Since many Mito families rely upon high-quality compounding pharmacies that often are located in states other than their own for preparation of the Mito cocktail and other supplements, the proposed Memorandum of Understanding would have a s

Jul 22, 2015 Comments: 0
by Christine Cox

Please join us on Friday, August 7, 2015 as we welcome two experts in the field of Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) provide an overview of these public benefits for Mito patients.  Topics to be covered in this conference call include:

Overview of SSI and SSDI programs;

The differences between SSI and SSDI;

Social Security’s definition of disability as it pertains to mitochondrial disease;

Jul 15, 2015 Comments: 0
by Christine Cox

Please join MitoAction as we welcome Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts. Ms. Hines will be speaking Wednesday, May 27, 2015 at 12 p.m. on the basics of estate planning and special needs trusts laws in the U.S. Questions to be answered include:

May 21, 2015 Comments: 0
by GingerD
What is the historical use of marijuana for medical purposes? Are there legalities associated with medical marijuana use? When is medical cannabis a potential therapeutic option for patients with mitochondrial disease?
Apr 20, 2015 Comments: 0