Stay Up to Date! Like us on Facebook    for the latest news and announcements    

MitoAction Blog

by GingerD
Join us on Friday, April 21 at Noon EST/9 a.m. PST as Dr. Michio Hirano, Chief of the Neuromuscular Division at Columbia University Medical Center, and Kris Engelstad MS CGC, a board-certified genetic counselor and program coordinator at Columbia University Medical Center, discuss Mitochondrial Replacement Therapy.

Learn more about MRT, also known in the media as three-person babies.

Topics of discussion include:

Apr 16, 2017 Comments: 0
by GingerD
Join us on Thursday, March 2 at 3 p.m. EST/Noon PST as Greg Macpherson, CEO of MitoQ, discusses "Mitochondria and MitoQ: A Research Update."

MitoQ's mission is to raise awareness of mitochondria and the link between optimal mitochondria function, health, and longevity.

Topics of discussion include:

Feb 14, 2017 Comments: 0
by GingerD

Kayla West’s cousins have mitochondrial disease. “I helped them feel like normal kids,” she said. “That’s what they wanted.”Kayla spent two years helping to take care of her cousins before her family moved from Washington to Texas. She would make sure they didn’t get too hot; she hooked them up to their heart monitors, oxygen, and feeding tubes before bed; she played with them; and she carried them if they needed it. “They became a huge part of my life,” she said.

Feb 07, 2017 Comments: 0
by GingerD
Nov 30, 2016 Comments: 0
by GingerD
Join us on Friday, Dec. 2 at noon EST/9 a.m. PST as Mark Tarnopolsky MD, PhD, FRCP(C) discusses exercise and nutrition therapy for mitochondrial disease.Dr.
Nov 23, 2016 Comments: 0
by GingerD

This is a joint message between MitoAction, UMDF, and the Foundation for Mitochondrial Medicine for the benefit of the mitochondrial disease community.

Patients, parents, and families -- please join us Tuesday, Dec. 6, 2016 at Noon EST (9 a.m. PST) by teleconference for a discussion of data from Stealth BioTherapeutics' Mitochondrial Myopathy clinical trial.

Nov 10, 2016 Comments: 0
by GingerD

The groom and groomsmen wore BowTie Cause MitoAction bowties. The bridesmaids wore green. Every guest got a MitoAction bracelet. Even the wedding invite was green and included the Mito ribbon.

The bride, Devon Gottfurcht, has mitochondrial disease and she used her wedding to Dan DeSario as a vehicle to raise awareness about Mito. “There’s not a lot of awareness for mitochondrial disease,” she said.

Oct 26, 2016 Comments: 0
by GingerD
Join us on Friday, Nov. 4 at noon EST/9 a.m. PST as Cheryl M.
Oct 25, 2016 Comments: 0
by GingerD
Join us on Friday, Oct. 7 at noon EST (9 a.m. PST) as Dr. Darius Adams, a clinical geneticist, discusses molecular diagnostic testing for mitochondrial disorders.Dr.
Sep 29, 2016 Comments: 0
by GingerD
Join us on Friday, Aug. 5 at noon EDT as patient advocate Kristi Wees discusses medical homes for Mito patients.Topics include:
Jul 25, 2016 Comments: 0

Pages