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MitoAction Blog

by Cristy Balcells
What are fatty acid oxidation disorders, and why are they related to mitochondrial disorders?

Join us this month on Friday February 5th, 2016 with Dr. Jerry Vockley, University of Pittsburgh Cleveland Family Professor of Pediatric Research and Professor of Human Genetics at the Children's Hospital of Pittsburgh of UPMC. Dr. Vockley is the Chief of Medical Genetics and Director of the Center for Rare Disease Therapy.

Additional areas of discussion include: 

Jan 25, 2016 Comments: 0
by GingerD
10-year-old author focuses on what Mito kids can do 

“This book shows that even though children who have disabilities have their struggles, they can still do things in their own, different way.”

--Author Noah Polatty’s favorite line from a review of “Sports Impossible”

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Writing is a struggle for Noah Polatty. That’s what Brandi and Chad Polatty were told about their son, who has mitochondrial disease.

Dec 22, 2015 Comments: 0
by GingerD

Dec 09, 2015 Comments: 0
by Cristy Balcells

This summary made possible by the generous support of Choate, Hall & Stewart

 

Nov 23, 2015 Comments: 0
by Cristy Balcells
What is Mitochondrial Myopathy? Learn more with Dr. Bruce Cohen on November 20th

 

Nov 10, 2015 Comments: 0
by GingerD

 

1 girl + 1 community = big differenceBrionna & family have right equation to raise awareness

Never underestimate the power of one: one girl, one mom, one family, one community, one cause.

Nov 06, 2015 Comments: 0
by Cristy Balcells
Mitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial dysfunction, cell damage and organ dysfunction. Join us this month with Dr.
Sep 17, 2015 Comments: 1
by Cristy Balcells
What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient.
Sep 02, 2015 Comments: 0
by Cristy Balcells
It's that time of year ... summer comes to a close and children everywhere are going back to school!
Aug 20, 2015 Comments: 0
by Christine Cox

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding concerning the distribution of products from compounding pharmacies.  The proposed Memorandum of Understanding would substantially limit the ability of compounding pharmacies to distribute compounded prescriptions across state lines.  Since many Mito families rely upon high-quality compounding pharmacies that often are located in states other than their own for preparation of the Mito cocktail and other supplements, the proposed Memorandum of Understanding would have a s

Jul 22, 2015 Comments: 0

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