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by Cristy Balcells

Dysmotility: abnormal contractions of the bowel, which slows or impairs digestive emptying and may cause symptoms such as pain, nausea, bloating, diarrhea, constipation or vomiting. Dysmotility can be caused by abnormalities of the muscles of the intestine (myopathy) or by abnormalities in the nerves in the intestine which control the muscles (neuropathy). For children and adults with mitochondrial disease, dysmotility is common and can be due to muscle myopathy and/or autonomic nervous system dysfunction (dysautonomia).

Feb 27, 2014 Comments: 0
by Cristy Balcells
Join us for the annual "Mito Town Meeting" on Thursday Jan. 9, 2014 at noon EASTERN time (9 a.m. Pacific). The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Jan 06, 2014 Comments: 0
by Cristy Balcells
Stay informed - join the Bendavia communication list to be contacted first about future clinical trials!Want to learn more? Watch the video and see the FAQs at www.mitoaction.org/bendavia
Sep 30, 2013 Comments: 1
by Cristy Balcells

It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?

Feb 21, 2013 Comments: 0
by Cristy Balcells
Do you have a child with mitochondrial disease (known or suspected)?Are you stressed?Are you tired?Do you feel like no one, including friends and even your own doctors, really understands what it's like to be the parent of a child with Mito?You can make a difference by participating in this 10 minute survey through Washington State University School of Nursing. WE NEED YOUR VOICE!!!
Jan 28, 2013 Comments: 0
by Cristy Balcells
Join us for the annual "Mito Town Meeting," Friday, Jan. 4, 2013 at noon EASTERN time. The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Importance of Community: Philip Borden, MitoAction Board President

Jan 02, 2013 Comments: 0
by Cristy Balcells

What should you do when you or your child is sick?

Being sick, even with a cold or a simple virus, is tough for most children and adult Mito patients. Many people with mitochondrial disease are "wiped out" when ill, and can take much longer to recover. Join us Friday December 7th, 2012 for an exciting teleconference with Dr. Mark Korson as we discuss what to do when a Mito patient is sick at home:

Nov 30, 2012 Comments: 0
by Cristy Balcells

Join us this month on Friday November 2nd at 12 pm EDT to learn more about exercise and physical therapy options for mitochondrial disease patients. Children and adults with Mito face a tough dilemma - we hear exercise may be helpful for those with mitochondrial disease, but exercise can be painful or downright impossible due to fatigue, muscle weakness, and other symptoms.

Oct 26, 2012 Comments: 0
by Cristy Balcells

Patients, parents and families - please join us Friday October 5th 2012 by teleconference to learn more about this exciting mitochondrial disease clinical trial.

 LISTEN TO THE RECORDING OF THIS MEETING NOW

Oct 02, 2012 Comments: 0
by Cristy Balcells
Join us this month with education chair Kirsten Casale and executive director and author Cristy Balcells to answer parent's most commonly asked questions about helping kids with Mito be successful in school.Kids with Mito are complex. Navigating the educational system is also complex. Often parents are wonderful advocates but don't know or understand the law.
Sep 03, 2012 Comments: 0

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