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The story of one girl held in custody in Boston without the support of her parents due to a disagreement about her mitochondrial disease diagnosis is an example of a problem which is happening to families across the country. Join us in taking action and learn more about our advocacy efforts.
How can you prepare your child for independence?
Join us with Dr. Joseph Clark PhD to learn more about creatine deficiencies. Dr. Clark is a professor of neurology at the University of Cincinnati College of Medicine. His many research interests include creatine deficiency disorders, glutathione and oxidative stress, and the role of cyclocreatine in the treatment of autism spectrum disorder.
Join us this Friday, September 13th 2013 at 12 PM Eastern time (9 AM Pacific) for a toll-free teleconference with Dr. Richard Boles as we learn more about how to interpret genetic test results.
Patients, parents and families - please join us Friday April 5th by teleconference to learn more about this exciting mitochondrial disease clinical trial. An update from Edison Pharma on the Development of EPI-743
It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?