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MitoAction Blog

by Cristy Balcells

Interpreting Common Lab Tests & Values 101: A Lesson for Mito Patients & Families

LISTEN TO THE RECORDING OF THIS MEETING HERE

Apr 02, 2012 Comments: 0
by Cristy Balcells
Join us this month with Dr. Richard Haas from University of California San Diego to discuss:Practical Approaches to a Mito Diagnosis

LISTEN TO THE RECORDING OF THIS MEETING HERE

Feb 28, 2012 Comments: 0
by Cristy Balcells

During a time when families with children with mitochondrial disease may face accusations of medical child abuse or Munchausen's Syndrome by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss:

Jan 31, 2012 Comments: 0
by Cristy Balcells
Read below for a recap of the "2012 Mito Town Meeting"Everyone - parents, patients, family members and interested volunteers - is encouraged to call in and participate as we discuss important topics for the year.
Jan 05, 2012 Comments: 3
by GingerD

For a pdf version of this story, please click here.

      Paul Harty and Eric Harty are not only first cousins; they are friends. Eric looks up to Paul, who is older. Paul admires Eric's artistic ability. They are both musicians. They support each other. They are as close as brothers. 

Dec 15, 2011 Comments: 0
by GingerD

 I have lost so much connection with the world and other people.  The deepest loss is with my family.  Sometimes my perception of their indifference to me becomes intense.  In a nutshell my family values most highly success, prestige, and status.  Success to them means being number one, a winner.  They work hard to stay on top.  They all base their value on professional competence and aim at being the best at what they do, mainly for prestige for being at the top of their profession. 

Nov 01, 2011 Comments: 8
by Cristy Balcells

Do I have Mito? Does my child have Mito?How do I know?How can I be tested?What should I do?!

Oct 25, 2011 Comments: 2
by Cristy Balcells
Using IV Infusions for Fluids and Nutrition

 

DOWNLOAD THE SLIDES TO ACCOMPANY THIS PRESENTATION HERE

LISTEN TO THE RECORDING HERE

Oct 04, 2011 Comments: 0
by Cristy Balcells
Do people with mitochondrial disease have issues with immunity and allergies?What are immunodeficiency disorders, and why is this important for mitochondrial disease patients?Are treatment approaches for allergies and immunodeficiency different for Mito patients?
Aug 29, 2011 Comments: 0
by Cristy Balcells
Some children and adults with mitochondrial disease also have seizure disorders or epilepsy.

 

Join us this month with Dr. Mary Kay Koenig from Children's Memorial Hermann Hospital at the University of Texas Medical School at Houston to learn more, including:

Aug 01, 2011 Comments: 0

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