Forums
| Forum | Topics | Posts | Last post |
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This is all the general information on the MitoAction forums.
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Welcome to the MitoAction forum! Please read threads in this forum first. This is where information relevant to the MitoAction forums will be posted.
| 8 | 22 | 21 weeks 6 days ago by Anthonys mom |
Post info on events and fundraising here.
| 4 | 15 | 37 weeks 5 days ago by arktjk |
If you need help with anything regarding the boards, post your questions here. If you have any suggestions let us know.
| 3 | 8 | 13 weeks 3 days ago by Tina_EvesMum |
This section is where you can post relevant news articles, studies, or anything advocacy related.
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Post any news article regarding Mito that you would like to share.
| 2 | 8 | 28 weeks 6 days ago by janice |
If you hear about any new studies or research going on regarding Mito, please post it here.
| 1 | 1 | 46 weeks 3 days ago by janice |
Anything regarding Mito advocacy can be posted here. If there is anything going on in your area regarding Mito advocacy please let us know so we can help support the cause.
| 2 | 4 | 23 weeks 1 day ago by kayjay |
Please help us spread the word about life with Mito! Post a link to your Blog or website here.
| 15 | 25 | 37 weeks 3 days ago by arktjk |
| 3 | 8 | 19 weeks 2 days ago by arktjk | |
Information for parents of children with Mito
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Here's where you say "hello" and tell us a little bit about yourself.
| 45 | 248 | 3 weeks 1 day ago by mandarine28 |
Where you post things that don't fit in to any of the other topics.
| 43 | 166 | 2 days 15 hours ago by suegaile |
You can ask medical related questions or post medical tips in this section.
| 72 | 345 | 1 week 5 days ago by Tina_EvesMum |
This is where you can come to discuss any sort of Mito related testing and medical treatments.
| 16 | 53 | 2 weeks 5 days ago by Tina_EvesMum |
This section is for where the Mito world collides with the world of Autism.
| 1 | 7 | 19 weeks 3 days ago by janice |
For those with probable or suspected Mito that just haven't gotten a diagnosis yet.
| 18 | 73 | 7 weeks 5 days ago by Sophie |
If you're feeling angry or upset, here is where you can come when you just need to get it all out. This section is for support and encouragement only, please do not debate or negate any of the feelings that our members share in this section.
| 8 | 63 | 6 weeks 1 day ago by Tina_EvesMum |
If you have lost a loved one, you can come here to post about it. This area is for support only.
| 1 | 2 | 35 weeks 3 days ago by Tina_EvesMum |
Information and forums for Adults with Mito
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Here is where you say "hello" and tell us a little about yourself.
| 7 | 68 | 7 weeks 5 days ago by whelmka |
This section is where you can sit down and chat about life and all the topics that don't fit in the other sections.
| 14 | 69 | 18 weeks 14 hours ago by kathy |
This section is where you can discuss anything medically related. Please feel free to share tips, as questions, or just ask what's on your mind.
| 29 | 188 | 9 weeks 5 days ago by lorimar |
This is where you can come to discuss any Mito related testing or treatments.
| 3 | 15 | 38 weeks 2 days ago by cellolover |
This section is where you can come and vent about life when it's not going like you want it to. This area is for support only, please do not debate or negate the feelings that anyone has expressed.
| 6 | 14 | 7 hours 37 min ago by Syd |
For those with probable or suspected Mito that haven't been diagnosed yet.
| 7 | 31 | 16 weeks 4 days ago by lorimar |
If you have lost a loved one, this is the place to post about it. This forum is for support only.
| 1 | 6 | 35 weeks 13 hours ago by Anthonys mom |
A place for teens with Mito to discuss their own issues and provide each other support. MitoAction requests that teens have parental permission to participate before posting. Please keep it respectful and supportive!
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Post your introduction here. Just say "hello" or tell us a little about yourself.
| 6 | 57 | 29 weeks 5 days ago by cellolover |
A place to come and hang out with people who understand.
| 2 | 16 | 12 weeks 5 days ago by Zero94 |
Where teens can come and talk about Mito and medical related topics.
| 5 | 22 | 18 weeks 4 days ago by joe17 |
A place for teens to come and vent about how they feel when they're upset.
| 0 | 0 | n/a |
Information on all aspects of Mito related legal advocacy. Not included is School advocacy, which has its own section.
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Early Intervention is a program designed for children ages 0-3 to receive free therapies based on the individual child's needs.
| 1 | 1 | 1 year 20 weeks ago by kayjay |
supplemental security income, SSI, is designed to give additional income to those with special needs that meet certain financial requirements.
| 1 | 1 | 1 year 20 weeks ago by kayjay |
Information about public, private, and state insurance and your rights regarding each.
| 2 | 2 | 33 weeks 4 days ago by sharon_alan |
A legal will decides who gets possession of your material possessions after death, and also outlines legal guardianship of any children you leave behind.
| 2 | 3 | 38 weeks 2 days ago by beck7422 |
A trust fund to safely guard monetary inheritance. The fund safeguards the money from abuse, yet does not prevent the person from receiving state and federal assistance.
| 1 | 1 | 1 year 20 weeks ago by kayjay |
Find information or as questions in this section about durable power of attorney and living will.
| 1 | 1 | 1 year 20 weeks ago by kayjay |
Find information or ask questions about legal guardianship of special needs people over the age of 18.
| 1 | 1 | 1 year 20 weeks ago by kayjay |
Please visit our school advocacy section online, and the resources page here http://www.mitoaction.org/tools-for-special-education for an extensive collection of suggestions and resources to help your child with mitochondrial disease succeed at school!
Post questions for discussion here as well!
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Sports ideas for kids with Mito.
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Post questions and ideas about sports!
| 2 | 5 | 18 weeks 4 days ago by joe17 |
This section is for spouses, friends, family, and care providers for patients with mito.
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Here is where you say "hello" and tell us a little bit about yourself and what part you play in the Mito journey.
| 0 | 0 | n/a |
For every day chit chat that doesn't fit in any of the other categories.
| 0 | 0 | n/a |
A place where the spouses of those affected with Mito can come and get support.
| 3 | 14 | 3 weeks 2 days ago by Tina_EvesMum |
A place where grandparents of kids with Mito can come and offer each other support and brag about the grandkids!
| 1 | 4 | 1 year 29 weeks ago by MotherWhimsey |
A place for friends, family, and medical care providers to discuss general topics related to Mito. Feel free to ask your medical questions on either the adult or parent section if you feel it would give you a better answer.
| 3 | 18 | 33 weeks 4 days ago by sharon_alan |
This is a place for nurses, doctors, respite workers, therapists, and any other type of care provider to discuss medically relevant topics.
| 0 | 0 | n/a |
If you have lost a loved one, this is the place to post about it. This forum is for support only, please be respectful.
| 0 | 0 | n/a |
If you have an overload of medical supplies or you find yourself in search of something, this is the place to post. We request that all transactions be "free for shipping." This means that the buyer is responsible for the cost of shipping, but the items themselves are donated. Any transactions done for monetary gain at this time must be done off the board. Thank you.
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Here is where you post regarding any type of Formula or feeding supplies.
| 2 | 2 | 1 year 15 weeks ago by Anthonys mom |
For all supplies respiratory related.
| 1 | 1 | 36 weeks 5 days ago by arktjk |
For any durable medical equipment you're would like to donate or that you are in search of.
| 3 | 4 | 3 weeks 5 days ago by red-tape |
For all those random bits of medical paraphernalia that don't quite fit into the other categories.
| 0 | 0 | n/a |
Here is where you can find members in your own area, plan meet ups, and learn more about what's going on in your area.
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For our members in Minnesota, Wisconsin, Iowa, Illinois, Michigan, Missouri, Nebraska, Kansas, North Dakota, South Dakota
| 8 | 36 | 2 weeks 3 hours ago by cellolover |
For our members in Oklahoma, Arkansas, Louisiana, Texas, and New Mexico.
| 2 | 4 | 9 weeks 3 days ago by shawneejb18 |
Areas including Main, New Hampshire, Vermont, Massachusetts, New York, Rhode Island, Connecticut, Delaware, New Jersey, and Pennsylvania.
| 3 | 9 | 10 weeks 4 days ago by Michele |
For our members in West Virginia, Virgina, Kentucky, Tennessee, Alabama, Georgia, Florida, North Carolina, South Carolina, and Mississippi.
| 2 | 8 | 1 year 5 weeks ago by polatty |
For our members in Washington, Montana, Oregon, Idaho, Whoming, Utah, Colorado, Arizona, Nevada, and California.
| 3 | 15 | 33 weeks 4 days ago by smangni |
Hawaii, Alaska, Guam, Puerto Rico, and US Virgin Islands.
| 0 | 0 | n/a |
For our members in Canada.
| 1 | 14 | 15 weeks 15 hours ago by mitoscottie |
For our members in Europe.
| 2 | 7 | 42 weeks 5 days ago by Rowly |
Asia, India, Pacific Islands.
| 0 | 0 | n/a |
Africa, Middle East, Russia.
| 1 | 2 | 1 year 6 weeks ago by basma |
Mexico and South America
| 0 | 0 | n/a |
Australia and New Zeland
| 0 | 0 | n/a |
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