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This is all the general information on the MitoAction forums.
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Welcome to the MitoAction forum! Please read threads in this forum first. This is where information relevant to the MitoAction forums will be posted.
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16 | 50 | By vickim 3 months 1 week ago |
| 5 | 16 | By XxShywhisperxX 3 weeks 4 days ago | |
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If you need help with anything regarding the boards, post your questions here. If you have any suggestions let us know.
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8 | 19 | By David 1951 7 months 3 weeks ago |
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This section is where you can post relevant news articles, studies, or anything advocacy related.
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| 5 | 11 | By JuliaG 1 year 1 month ago | |
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If you hear about any new studies or research going on regarding Mito, please post it here.
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12 | 22 | By swuhoo 8 months 2 weeks ago |
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Anything regarding Mito advocacy can be posted here. If there is anything going on in your area regarding Mito advocacy please let us know so we can help support the cause.
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2 | 4 | By kayjay 3 years 7 months ago |
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Please help us spread the word about life with Mito! Post a link to your Blog or website here.
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19 | 29 | By Dirty-Butter 1 year 4 months ago |
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5 | 14 | By arktjk 3 years 1 month ago |
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Information for parents of children with Mito
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2 | 3 | By hairelovejoy 13 hours 52 min ago |
| 71 | 324 | By dbarsook 2 months 3 weeks ago | |
| 55 | 194 | By morgans mom 3 months 3 weeks ago | |
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You can ask medical related questions or post medical tips in this section.
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96 | 399 | By MichelleAGianino 2 months 3 weeks ago |
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This is where you can come to discuss any sort of Mito related testing and medical treatments.
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27 | 74 | By Val 3 months 6 days ago |
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This section is for where the Mito world collides with the world of Autism.
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1 | 11 | By JoeysMom 1 year 4 months ago |
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For those with probable or suspected Mito that just haven't gotten a diagnosis yet.
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32 | 95 | By barbdavis61 3 months 6 days ago |
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If you're feeling angry or upset, here is where you can come when you just need to get it all out. This section is for support and encouragement only, please do not debate or negate any of the feelings that our members share in this section.
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10 | 66 | By RobynG 1 year 4 months ago |
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If you have lost a loved one, you can come here to post about it. This area is for support only.
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3 | 8 | By chrissy77 3 months 2 weeks ago |
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Information and forums for Adults with Mito
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2 | 2 | By cmeyer 6 months 4 days ago |
| 21 | 127 | By nancyw 2 months 1 week ago | |
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This section is where you can sit down and chat about life and all the topics that don't fit in the other sections.
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14 | 72 | By Carollind 3 years 3 weeks ago |
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This section is where you can discuss anything medically related. Please feel free to share tips, as questions, or just ask what's on your mind.
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52 | 270 | By Medgirl3 17 hours 58 min ago |
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This is where you can come to discuss any Mito related testing or treatments.
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11 | 26 | By morgans mom 3 months 3 weeks ago |
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This section is where you can come and vent about life when it's not going like you want it to. This area is for support only, please do not debate or negate the feelings that anyone has expressed.
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7 | 15 | By Syd 3 years 2 months ago |
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For those with probable or suspected Mito that haven't been diagnosed yet.
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15 | 61 | By amakayg 3 weeks 2 days ago |
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If you have lost a loved one, this is the place to post about it. This forum is for support only.
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1 | 6 | By Anthonys mom 3 years 10 months ago |
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A place for teens with Mito to discuss their own issues and provide each other support. MitoAction requests that teens have parental permission to participate before posting. Please keep it respectful and supportive!
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Post your introduction here. Just say "hello" or tell us a little about yourself.
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6 | 57 | By cellolover 3 years 8 months ago |
| 2 | 16 | By Zero94 3 years 5 months ago | |
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Where teens can come and talk about Mito and medical related topics.
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5 | 22 | By joe17 3 years 6 months ago |
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A place for teens to come and vent about how they feel when they're upset.
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Information on all aspects of Mito related legal advocacy. Not included is School advocacy, which has its own section.
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Early Intervention is a program designed for children ages 0-3 to receive free therapies based on the individual child's needs.
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1 | 1 | By kayjay 4 years 6 months ago |
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supplemental security income, SSI, is designed to give additional income to those with special needs that meet certain financial requirements.
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1 | 1 | By kayjay 4 years 6 months ago |
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Information about public, private, and state insurance and your rights regarding each.
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1 | 1 | By kayjay 4 years 6 months ago |
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A legal will decides who gets possession of your material possessions after death, and also outlines legal guardianship of any children you leave behind.
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2 | 3 | By beck7422 3 years 10 months ago |
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A trust fund to safely guard monetary inheritance. The fund safeguards the money from abuse, yet does not prevent the person from receiving state and federal assistance.
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1 | 1 | By kayjay 4 years 6 months ago |
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Find information or as questions in this section about durable power of attorney and living will.
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1 | 1 | By kayjay 4 years 6 months ago |
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Find information or ask questions about legal guardianship of special needs people over the age of 18.
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1 | 1 | By kayjay 4 years 6 months ago |
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Please visit our school advocacy section online, and the resources page here http://www.mitoaction.org/tools-for-special-education for an extensive collection of suggestions and resources to help your child with mitochondrial disease succeed at school!
Post questions for discussion here as well!
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Sports ideas for kids with Mito.
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| 2 | 5 | By joe17 3 years 6 months ago | |
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This section is for spouses, friends, family, and care providers for patients with mito.
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Here is where you say "hello" and tell us a little bit about yourself and what part you play in the Mito journey.
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A place where the spouses of those affected with Mito can come and get support.
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4 | 17 | By requiet 1 year 2 months ago |
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A place where grandparents of kids with Mito can come and offer each other support and brag about the grandkids!
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1 | 4 | By MotherWhimsey 4 years 8 months ago |
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A place for friends, family, and medical care providers to discuss general topics related to Mito. Feel free to ask your medical questions on either the adult or parent section if you feel it would give you a better answer.
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8 | 27 | By IsabelleSharon 1 month 4 days ago |
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This is a place for nurses, doctors, respite workers, therapists, and any other type of care provider to discuss medically relevant topics.
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If you have lost a loved one, this is the place to post about it. This forum is for support only, please be respectful.
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If you have an overload of medical supplies or you find yourself in search of something, this is the place to post. We request that all transactions be "free for shipping." This means that the buyer is responsible for the cost of shipping, but the items themselves are donated. Any transactions done for monetary gain at this time must be done off the board. Thank you.
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1 | 1 | By shannnonMK 7 months 3 weeks ago |
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Here is where you post regarding any type of Formula or feeding supplies.
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4 | 4 | By jenniangier 2 years 9 months ago |
| 2 | 3 | By red-tape 3 years 3 days ago | |
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For any durable medical equipment you're would like to donate or that you are in search of.
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3 | 4 | By red-tape 3 years 2 months ago |
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For all those random bits of medical paraphernalia that don't quite fit into the other categories.
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Here is where you can find members in your own area, plan meet ups, and learn more about what's going on in your area.
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For our members in Minnesota, Wisconsin, Iowa, Illinois, Michigan, Missouri, Nebraska, Kansas, North Dakota, South Dakota
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8 | 38 | By PattyM 9 months 4 weeks ago |
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For our members in Oklahoma, Arkansas, Louisiana, Texas, and New Mexico.
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2 | 4 | By shawneejb18 3 years 4 months ago |
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Areas including Main, New Hampshire, Vermont, Massachusetts, New York, Rhode Island, Connecticut, Delaware, New Jersey, and Pennsylvania.
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6 | 17 | By donnashuman 1 year 5 months ago |
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For our members in West Virginia, Virgina, Kentucky, Tennessee, Alabama, Georgia, Florida, North Carolina, South Carolina, and Mississippi.
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3 | 9 | By thebammanns 10 months 4 days ago |
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For our members in Washington, Montana, Oregon, Idaho, Whoming, Utah, Colorado, Arizona, Nevada, and California.
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3 | 15 | By smangni 3 years 9 months ago |
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| 1 | 14 | By mitoscottie 3 years 5 months ago | |
| 2 | 7 | By Rowly 3 years 11 months ago | |
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| 1 | 2 | By basma 4 years 3 months ago | |
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