Light a Light for Mito
Light a Light for Mito
For the angels we miss so dearly, we light a light and remember you.
Each year during the Wednesday of the third week of September, as we celebrate and join together to raise awareness for mitochondrial disease across the globe, we remember those who have lost the battle with mitochondrial disease and ask that friends and family "Light a Light" in their memory. Please send your photos and memory wishes to us at info@mitoaction.org
Mamie Rose is still smiling.
Audrey Elizabeth Lawrence 8/10/01 - 5/12/08
Ryan Mason Donnelly 9/10/06 - 5/1/08
everyday. You would have turned 5 years old last week. We hope you celebrated
in heaven and are taking good care of your little brother until we see you again. I am
so thankful you chose me to be your mommy.
We love you! Mommy, Daddy, Colin, Shane, Taylor and Trevor
"There is a sacredness in tears. They are not the mark of weakness,
but of power. They speak more eloquently than ten thousand tongues.
They are the messengers of overwhelming grief.......and unspeakable love. ~Washington Irving
Chase Ryan Donnelly 1/1/09 - 7/6/10
Love Mommy, Daddy, Colin, Shane, Taylor and Trevor
"Remember to keep playing after EVERY storm."~ Mattie J.T. Stepanek
For our daughter Alicia J. Hobley who left her exhausted body on June 3, 2010 from Leigh's syndrome to go play in heaven. We miss you Little Red Bean.
Hayden Anthony Hamilton 03/05/08 - 06/13/11
Our little angel went back to heaven,
although Hayden's stay on Earth
seemed just a fleeting moment in time,
our memories of him will last forever!!
We love & miss you so much!!!
Love, Daddy, Mommy & Sister
Heather Grace Coleman 9/25/02 - 9/16/05
A man found a cocoon of a butterfly. One day a small opening appeared and he sat and watched the butterfly for several hours as it struggled to force its body through that little hole. Then it seemed to stop making any progress. It appeared as if it had gotten as far as it could and it could go no further. So the man decided to help the butterfly by taking a pair of scissors and snipping off the remaining bit of the cocoon. The butterfly then emerged easily, but it had a swollen body and small, shriveled wings. The man continued to watch the butterfly because he expected that, at any moment, the wings would enlarge and expand to be able to support the body, which would contract in time. Neither happened! In fact, the butterfly spent the rest of its life crawling around with a swollen body and shriveled wings. It never was able to fly.
What the man in his kindness and haste did not understand was that the restricting cocoon and the struggle required for the butterfly to get through the tiny opening were God's way of forcing fluid from the body of the butterfly into its wings so that it would be ready for flight once it achieved its freedom from the cocoon. Sometimes struggles are exactly what we need in our life. If God allowed us to go through our life without any obstacles, it would cripple us. We would not be as strong as we could have been. We could never fly. ~Author unknown
We are rejoicing as we weep; our beautiful butterfly is no longer bound by the confines of her Mito cocoon. With love from Mommy, Daddy, Katie, Nick, and countless others who were able to look past the cocoon of tubes and wires, and caught glimpses of her beautiful, colorful wings.
Connor Scott Millard 3/1/99 - 9/18/07
Connor, you are dearly loved and always remembered. We hold you so close to our hearts. Your spunky spirit will always be a part of us as we work to help other children and families. Thank you so much for all you have taught us and how you have changed our hearts and our lives in so many ways. With so much love and tears, until we hug and kiss again,
Mama, Papa, Caseygirl and your new baby brother Micah James
Rina Goldberg
Madeline "Kate" Stephens 4/17/01~7/13/08
Passed away from MELAS and missed more than words could ever describe.
Randi
My daughter, Randi, lost her very brave lifelong battle with
mitochondrial disease on July 25, 2010. One word described Randi,
UNIQUE! She was innocent, caring, loving, and encouraged each of us
to live a simpler life with a child's perspective. Randi rarely
complained, although she suffered daily with severe pain. Randi is my
inspiration to continue raising awareness of and making strides for
mitochondrial diseases.
Thank you for remembering my sweet angel, Randi!
Catherine LaFond-Evans
ReeNa
This is in memory of my daughter, ReeNa, who I lost to mitochondrial
disease (MELAS) one year ago March 30. She would have been 21 this
year. She should be having the time of her life but was taken by a
horrible disease. She is my hero. All the pain and suffering she
went through, I don't think I could have dealt with half of what she
went through. They say time cures all wounds but the hole in my heart
from loosing ReeNa has still not healed and never will. I miss her
terribly. I know you are in heaven happy and healthy. I love you and
miss you.
Love Mom
Leo Donald Fortunato 4/5/07-4/22/08
Leo Donald Fortunato was born on a snowy April 5, 2007, in
Fredericton, New Brunswick. Leo struggled for a year with
mitochondrial diseased before dying on Earth Day, April 22, 2008. His
big sister Emma misses giving Leo a bath and singing songs to him.
The families of Kirland Kilbride, Owen Eaves, Alexis Roung and Tucker
Patterson also know the incredible loss of a child to mitochondrial
disease. Please light a candle in honor of all children who have lost
their lives to Mito.
With love and compassion,
Sarah, Mario and Emma Fortunato
Abigail "Abby" Renee Kasuba 4/16/00-3/10/09
Passed away from MELAS
Jimmy "The Big Guy" McKay 11/2/06 - 12/27/07
For someone here for such a short time, it is amazing the change you made in the world. Hugs, kisses, zerberts, eskimo kisses, and big slobbery puppy dog kisses!
(Undiagnosed syndrome with secondary mitochondrial disease)
Maud Mary Adams Fullerton (01/22/1916 – 09/24/2005)
With two succeeding generations of a Mitochondrial Disease diagnosis, there can be no doubt about your diagnosis too. You lived until almost 90 years old, but your last 15 years were in a hospital and many years before that were in home care.
Rest easy, Mum … you have a flock of Mito angels to keep your watchful eyes upon with your endless patience and understanding smile. I am sure they are OK!
I love you. Jean
Madison Grantham -- 7-29-04 – 8-3-06
Madison had Alpers Syndrome
Heather Grace Coleman 9/25/02-9/16/05
It has been five years since Heather left her tired, broken body behind and flew to Heaven to be in Jesus' arms.
You can light a virtual candle in Heather's memory at:
Heavens_Playground Shrine At nshrine.com
Heather's birthday and Angel Day fall during Mitochondrial Disease Awareness Week, a time to learn about the disease that took her from us far too soon. Please visit www.mitoaction.org for more information, and consider making a donation in Heather's memory.
We love you, sweet Petunia, we will see you in Heaven, love Mommy,Daddy, (Heidi and Paul Coleman), Nicholas, and Kaitlin www.carepages.com/carepages/MoobleandMitoandMore
Jackson Thomas Feliciano
Kirkland Kilbride March 6, 2001-December 2, 2007
visit our event website: www.mitomarch.ca
Kirkland's webpage: www.caringbridge.org/canada/kirklandk/
George Garman
When You Ask
When you ask about her
Leave your fears at the door
Your questions open each window
Watch the sunlight stream in
I see her infectious grin
The soft hand inside mine
Come, sit, let me tell you
These times are too rare
When you ask about her
You give me permission
And I need this sunshine
Like daily bread
I can warm these rooms
With the life-giving memories
When you ask about her
You bring the flowers that never die.
by Alice J. Wisler