Media/Press

Print

MitoAction has established a non-profit channel on YouTube where you will find videos  related to mitochondrial disease.

http://www.youtube.com/mitoaction

Please visit and add your comments to our videos!

 Press Releases

MitoAction accepts grant to develop family assistance program

MitoAction Walk energizes mitochondrial disease patients

Joe Wise possesses unsinkable spirit

 Camp Korey changes lives for kids with Mito

ThriveRx Sponsors Children's G-Tube Book

Deep River Snacks features MitoAction on chip bags

What do the Kentucky Derby, Lilly Pulitzer® and MitoAction all have in common?

MitoAction develops on-line resource for Mitochondrial Disease Care Providers, sponsored by Edison Pharma

2010 Energy Walk & 5K Run for Mitochondrial Disease

Energy 4 Education DVD  available to teachers and parents

2008 Mitochondrial Disease Awareness Week

 


I'm Brianna Couture

current_

“What does a person with a severe disability look like? If the image that came to mind was a person who uses a wheelchair for mobility, than you're not alone. But here are the facts: over 26 million people in the United States with severe disability, of those 26 million only 7 million use assistive devices such as a wheelchair, cane, crutch or walker. In other words over 74% of the Americans with severe disabilities do not use any devices. So you can't judge a persons disability by whether or not the person looks disabled. It is invisible.”

Mitochondrial Disease: A new class of illnesses

NECN video

“Many people have never heard of Mitochondrial disease, but it affects nearly 1 in every 4,000 Americans. NECN's Health and Science reporter Anya Huneke has more on the challenges that those with the disease deal with on a daily basis. Dr. Katherine Sims of Mass. General Hospital joins us to talk about Mitochondrial disease.”

Audio Recordings

Interpreting Labs 101 with Dr Mark Korson
Practical Approaches to a Mito Diagnosis with Dr Richard Haas
Advocating Responsibly and Communicating Effectively
2012 Mito Town Meeting
Anesthesia Risks and Recommendations
How do I know I have Mito?
IV Hydration and Nutrition, Current topics with Thrive RX
Immunodeficiency Disorders and Mitochondrial Disease
Seizures, strokes and migraines with Dr Mary Kay Koenig
Dr Fran Kendall speaks about Mito-Autism
Edison Pharma Question and Answer about EPI-743
School and IEP advice for kids
Service Dogs for Children and Adults with Mito
Dysautonomia with Dr Boles
Mona Inocentes discusses IV Access
Mito Diagnosis and Autism
Sleep Disorders with Dr Weiss
Genetics of Mitochondrial Disease
Mitochondrial Function Disorders
Research and Realities of Exercise
Interview with Al Muto from Pine Pharmacy
Support for Siblings of Kids with Mitochondrial Disease
Mito Awareness Radio Clip
Blood tests for Mitochondrial disease diagnosis
Caring for the whole patient
Use of Hyperbaric Oxygen Therepy for Mitochondrial Disease Patients
Muscle Biopsy Testing with Dr Fran Kendall
Mitochondrial Toxicity
Nutrition for Mitochondrial Disease Patients
Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN
Question and Answers with compounding pharmacists
Dr. Marcus Favero speaks on Psychiatric Disorders, Meds and Mito
Overwhelmed No More
Update on Mito Treatment Approaches
Coping with Mitochondrial Disease
Munchausens by Proxy accusations in Children with Mitochondrial Disease
To Work or Not to Work
Medical Foods for Mito
Home Nutrition Support with guest Deb Pfister from NutriThrive
Drug Toxicity and Mitochondria
Palliative care and hospice
Special needs planning workshop with Jack Raycroft
MitoAction Interview with Stephen
Mitoaction Interview with Jamie Emory
Autism and Mitochondrial Disease
"Ideas from an occupational therapist" with speaker Susan Orloff, OTR/L
Genetic inheritance patterns in Mito with guest speaker Katherine Sims
Teen interview with Harrison
Teen interview with Olivia
Teen interview with Reed