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MitoAction has established a non-profit channel on YouTube where you will find videos from the 2007 Awareness Event as well as links to other videos related to mitochondrial disease.

http://www.youtube.com/mitoaction

Please visit and add your comments to our videos!

Federal Update: National Mitochondrial Disease Awareness week set for September 21-28, 2008

Press Releases

MitoAction develops on-line resource for Mitochondrial Disease Care Providers, sponsored by Edison Pharma

2008 Mitochondrial Disease Awareness Week


I'm Brianna Couture

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“What does a person with a severe disability look like? If the image that came to mind was a person who uses a wheelchair for mobility, than you're not alone. But here are the facts: over 26 million people in the United States with severe disability, of those 26 million only 7 million use assistive devices such as a wheelchair, cane, crutch or walker. In other words over 74% of the Americans with severe disabilities do not use any devices. So you can't judge a persons disability by whether or not the person looks disabled. It is invisible.”

Mitochondrial Disease: A new class of illnesses

NECN video

“Many people have never heard of Mitochondrial disease, but it affects nearly 1 in every 4,000 Americans. NECN's Health and Science reporter Anya Huneke has more on the challenges that those with the disease deal with on a daily basis. Dr. Katherine Sims of Mass. General Hospital joins us to talk about Mitochondrial disease.”

Audio Recordings

Muscle Biopsy Testing with Dr Fran Kendall
Mitochondrial Toxicity
Nutrition for Mitochondrial Disease Patients
Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN
Question and Answers with compounding pharmacists
Dr. Marcus Favero speaks on Psychiatric Disorders, Meds and Mito
Overwhelmed No More
Update on Mito Treatment Approaches
Coping with Mitochondrial Disease
Munchausens by Proxy accusations in Children with Mitochondrial Disease
To Work or Not to Work
Medical Foods for Mito
Home Nutrition Support with guest Deb Pfister from NutriThrive
Drug Toxicity and Mitochondria
Palliative care and hospice
Special needs planning workshop with Jack Raycroft
MitoAction Interview with Stephen
Mitoaction Interview with Jamie Emory
Autism and Mitochondrial Disease
"Ideas from an occupational therapist" with speaker Susan Orloff, OTR/L
Genetic inheritance patterns in Mito with guest speaker Katherine Sims
Teen interview with Harrison
Teen interview with Olivia
Teen interview with Reed
Teen interview with Morgan
Teen interview with Donovan
Teen interview with Kristin
Interview with Annalise
October MITO Meeting: Tummy Troubles
Mitochondria: The BIG Picture
Meeting: CoQ10 and Creatine, August 1 2008
Drug Trial Begins Targeting Mitochondrial Diseases
Meeting: Pain, July 11 2008
Meeting: Multiple Specialists June 6th 2008
Meeting: Heat Intolerance May 2nd 2008
Meeting: Dysautonomia April 4th 2008
Meeting: The Mito Cocktail March 7th 2008
Meeting: Disability Advocacy Febrary 1st 2008
Meeting: Committee Chairs January 28th 2008
Meeting: Exercise Intolerance January 4th 2008
Meeting: Holiday Stress December 7, 2007
Interview with Cristy Balcells September 30th 2007