TOP TEN RESOURCES
FOR PATIENTS & FAMILIES with
MITOCHONDRIAL DISEASE

1. MitoAction's monthly teleconference, with guest speakers, by toll-free teleconference (every first Friday of the month @ noon) and summaries of medical Mito discussions archived in the BLOG. For an email message to send to others with meeting times, click here.
   

2. Online Mito Symptom Management Guide for Clinicians, a comprehensive resource designed to support the patient in the community health setting (written by M. Klehm & Dr. Korson)

3. Online forum, to ask questions and connect with others

4. MitoAction Podcasts in iTunes (recordings of the live meetings and presentations on topics important to patients and families)

5. Videos, for education and awareness, viewable on YouTube

6. Energy 4 Education dvd and complimentary school advocacy resources

7. Mito 411 support hotline, staffed by volunteers who are patients or caregivers (888-MITO-411)

8. September 19. 2010 MitoAction Walk & Family Day (Castle Island, Boston, MA)

9. Online and telephone support groups, held monthly (for newly diagnosed families, parents, adult patients/spouses, and parents of children with autism & Mito)

10. Monthly e-news, targeted to help inform patients and families of the latest resources and information relevant to mitochondrial disease