• Facebook
  • Instagram
  • Twitter

Get Support – Call 1-888-MITO-411

  • Shop
  • Events
  • Donate
MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • FAOD Resources
      • International Metabolic Conference
  • Programs & Support
    • Support
      • Mito411
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • MitoChampions
      • Support Calls
      • Positive Peach Packages
    • Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund
      • Marcel’s Way Family Fund
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Resources & Planning
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate
      • Honor and Memorial Giving
      • Another Helping
      • Matching Gifts
      • Shop for MitoAction
      • Giving Tuesday – Ways to Give
    • Events
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • MitoChampions
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
  • About Us
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
    • Newsletter Signup
  • Show Search

Mannie Taimuty-Loomis, MA, LBS

Print Friendly, PDF & Email

Mannie Taimuty-Loomis is the founder and executive director of Jonah & The Whale Foundation, a nonprofit organization that assists families, primarily in the US and Canada, dealing with disabled and chronically ill children.  Ms. Taimuty-Loomis holds a Master’s Degree in Higher Education, specializing in teaching.  Her thesis focused on the transitional needs of autistic high school students wishing to pursue a college education.  Adding to her expertise in Autism Spectrum Disorders, Mannie is also the co-author of Autism and Higher Education: Putting the Pieces Together, publication date TBA.  In addition to running J&TWF, Mannie currently works as a Behavioral Specialist Consultant where she writes and oversees clinical intervention service plans for children with autism.  Finally,  Ms. Taimuty-Loomis is more than just a professional in the field – she is also a mother of five children, three of whom have suffered or continue to suffer with Mitochondrial Disease.  Adding to her personal experience with the difficulties in raising a child with special needs, Ms. Taimuty-Loomis and her family not only faced the unexpected death of their son Jonah (the namesake of the Foundation) in 2001, but they also faced false MSbP allegations regarding their other two afflicted children back in 2004.  Although she and her husband were vindicated of all wrongdoing, the experience has left a long-lasting impact; not only on their family and how they deal with Mitochondrial Disease, but also in how they run the Foundation and continue their mission to help families advocate responsibly and communicate effectively.

Past Expert Series Presentations

Advocating Responsibly and Communicating Effectively

Upcoming
Events

View All
Jun 4
7:00 pm - 8:00 pm

Traveling with an FAOD

Jun 8
8:15 am - 9:45 am Event Series

FAOD Monthly Support Call

Jun 9
12:00 pm - 1:00 pm Event Series

Weekly Support Call

View Calendar

Expert
Series

View All

Upcoming Presentations

Jun 16
12:00 pm - 1:00 pm

Aging with Mito

View Calendar

Last Presentation

Expert Series: Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d)Expert Series:
Presented May 3, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

  • Support
  • Resources
  • Donate
  • Events
  • Subscribe
©2023 MitoAction. All Rights Reserved. Website by ThinkGenetic, Inc.

Privacy Policy. Terms of Use.