IMC Conference Session
Events
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12 events,
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Join the Ultragenyx team for an overview of their latest research, clinical study updates, and ongoing initiatives focused on advancing treatments for individuals living with fatty acid oxidation disorders (FAODs). Learn about current progress, future directions, and the company's continued commitment to partnering with the FAOD community to accelerate innovation and improve patient outcomes.
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Guidelines for FAODs are essential as clinicians seek to collaborate and find treatment for LC-FAODs. In the last 5 years, an international group of experts in the FAOD field worked together to discuss and create guidelines for LC-FAOD treatment, which will be published in the near future. Some of these clinicians are also involved in […] |
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When a child is diagnosed with an FAOD the world of a caregiver drastically changes. This presentation will draw on the insight of both a long-standing geneticist in the FAOD community and parent who is 17 years into the journey. Together they will explore topics that families face who are new to the journey. If […]
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This presentation will review the diet records and current supplements from participants in the Natural History of LCHADD Retinopathy study. Then Dr. Gillingham will discuss how to maximize micronutrient intake, what is the right amount of protein, and how to think about body weight and weight loss while also managing an FAOD. |
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