IMC Conference Session
Events
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10 events,
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Guidelines for FAODs are essential as clincians seek to collaborate and find treatments for patients with FAODs. The International Network for Fatty Acid Oxidation Research and Management (INFORM) was created to promote research and discussion into the cause, diagnosis, and management of fatty acid oxidation disorders. Recently, clinicians from this group worked together to discuss/create […]
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As more women with lcFAODs are now of child-bearing age, questions of safety have arisen. Dr. Grunert will discuss an international study, in which scientists and clinicians collected data on 89 pregnancies in 39 women with lcFAODs. Their current data shows that the outcome of pregnancies in lcFAOD patients was generally favorable, despite a significant […] |
8 events,
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When a child is diagnosed with an FAOD the world of a caregiver drastically changes. This presentation will draw on the insight of both a long-standing geneticist in the FAOD community and parent who is 17 years into the journey. Together they will explore topics that families face who are new to the journey. If […]
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This presentation will review the diet records and current supplements from participants in the Natural History of LCHADD Retinopathy study. Then Dr. Gillingham will discuss how to maximize micronutrient intake, what is the right amount of protein, and how to think about body weight and weight loss while also managing an FAOD. |
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