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The FAOD community is comprised of numerous types of FAODs. How do they compare, what enzymes are affected, and why does this lead to different treatments? Did you ever wish […]
35 events found.
IMC Pre-Conference Session
Events
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2 events,
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Meet up with members of the Mito/FAOD community who are genetically undiagnosed. Join in to share stories, resources, and support each other on our undiagnosed journeys. |
1 event,
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If you are an adult patient or a caregiver of an FAOD you know that there are unique challenges when managing a chronic illness. This is a safe space to discuss how to navigate these ups and downs, share meaningful resources, and connect on a deeper level while creating meaningful strategies. This unique space will […] |
2 events,
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Adulting with an FAOD presents unique challenges and questions. This presentation will discuss the multidisciplinary care team, how to improve coordination of care and how clinicians safely apply “trial and error” for situations where they have no clear data.
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From infancy to the teenage years, this roundtable will be a space for MCADD families to share their experiences and learn from one another. MCADD is the most common FAOD and is largely treated through avoiding fasting. Our kids tend to be outwardly healthy most of the time, but MCADD is always there and has […] |
1 event,
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Families with FAODs exist all over the world. In this fun space we will explore: How do you manage your/your child's medical routine/diet in your own country? What are creative ways to organize traveling to other countries? How to the health care systems vary in different spaces? Where do you feel the most safe traveling? […] |
2 events,
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This roundtable discussion will bring together families and educators to explore how to successfully support students in the school setting. Participants will learn practical strategies for navigating school systems and educating teachers/staff about medical and academic needs to promote safety, inclusion, and student success.
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Navigating romantic relationships can be challenging, and having an FAOD adds additional layers to the mix. Come chat with newlyweds Alex and Tanner Hansen to discuss all the stage and components that come with partnering. Including: Important conversation to have while dating, how to plan for marriage with a disability, birth control considerations, and more! […] |
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