Mito Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
10 events found.
Events
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IMC 2026
The International Metabolic Conference for Families and Individuals Impacted by Fatty Acid Oxidation Disorders, is an event dedicated to advancing knowledge and collaboration of patients, clinicians, and researchers. In partnership […]
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Understanding FAOD Guidelines: Created by INFORM
Guidelines for FAODs are essential as clincians seek to collaborate and find treatments for patients with FAODs. The International Network for Fatty Acid Oxidation Research and Management (INFORM) was created […]
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Pregnancies in Women With Long-Chain Fatty Acid Oxidation Disorders
As more women with lcFAODs are now of child-bearing age, questions of safety have arisen. Dr. Grunert will discuss an international study, in which scientists and clinicians collected data on […]
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FAOD Updates
Dr. Vockley will share current treatments and potential therapies in the FAOD community, with our yearly, "FAOD Updates!"
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Emerging Genetic Therapies for FAODs
New genetic therapies are under development for many rare diseases, and some have been approved by the FDA. However, none are approved for FAODs. This presentation will share ongoing research […]
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