Calendar of Events
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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The purpose of this day is to raise awareness of this rare but debilitating disease. The day forms part of the calendar of events included in World Mitochondrial Disease Week, and falls on the second Tuesday of September every year. Join us on September 9th to spread awareness for our TK2d community! Click HERE to […] |
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Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs. |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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“The idea for the MitoHeart Project began one evening on a MitoChampion zoom call. During the call, I was knitting and listening to others as they discussed a recent tragedy in our Mito community. I felt so powerless to help, but as I listened, the idea of making hearts for individuals who are struggling or […] |
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Join MitoAction September 15th at 7pm EST for a unique experience that will bring you inside understanding into the patient diagnostic and treatment journey. Mitochondrial disease patients value their GCs, geneticists, neurologists, PCPs and more, and have carved out this time to honor their patient journeys and educate the clinical community about their experiences through […] |
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Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […] |
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Each year during the Wednesday of Mitochondrial Disease Awareness Week, we celebrate and join together to raise awareness for mitochondrial disease across the globe, we remember those who have lost the battle with mitochondrial disease and ask that friends and family “Light a Light” in their memory. Please send your photos and memory wishes to us at info@mitoaction.org […] Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […] |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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On Saturday, September 20th, landmarks, buildings, homes, and monuments around the world lit up green to shine a light on mitochondrial diseases. This powerful global display raises visibility, sparks conversations, and shows solidarity with the mito community. You can make a difference from your doorstep. Change your home light to green or use your smart […] |
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Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone. |
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Having a young child with an FAOD brings joys and questions, amidst uncertainties! Join VLCADD mom, Megan Cranshaw, and LCHADD mom, Stephanie Harry, for a lunchtime chat! Together we will discuss our journeys, tips, tricks and questions about parenting an infant/young child with an FAOD! |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Mechanical ventilation can be a critical component of a comprehensive and successful plan to support a patient’s respiratory needs in helping them maximize their quality of life and reach their full potential. Doing so successfully starts with and continues to center around a discussion with a patient and his/her family about what their wishes are […]
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Join MitoChampions Debbie Valdez and Sue Leone as they take a playful look at smoothie making!! Bring your own smoothie to this session and sip while Debbie and Sue explore conversations around: Do you drink your smoothie first thing in the morning? Do you drink it as a meal, or with a meal, or for […] |
