• Facebook
  • Instagram
  • Twitter

Get Support – Call 1-888-MITO-411

  • Shop
  • Events
  • Donate
MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • FAOD Resources
      • International Metabolic Conference
  • Programs & Support
    • Support
      • Mito411
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • MitoChampions
      • Support Calls
      • Positive Peach Packages
    • Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund
      • Marcel’s Way Family Fund
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Resources & Planning
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate
      • Honor and Memorial Giving
      • Another Helping
      • Matching Gifts
      • Shop for MitoAction
      • Giving Tuesday – Ways to Give
    • Events
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • MitoChampions
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
  • About Us
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
    • Newsletter Signup
  • Show Search

Relationships with Medical Professionals in the Hospital

Print Friendly, PDF & Email

Although dealing with a chronically ill child who is hospitalized frequently tends to lead to natural friendships with medical staff parents see on a regular basis, it is imperative to remember to maintain good boundaries with medical professionals and staff.  Medical personnel, including nurses and therapists, are mandated reporters who must report suspicions of child abuse to the state child protective services department.  An offhand comment or venting session can easily be misinterpreted by someone who maintains this professional obligation and may inadvertently lead to an investigation by Child Protective Services.  Please click here for more information on communicating and advocating with medical professionals.

Given these risks, families should try to seek support from outside of hospital personnel while their child is hospitalized, especially for extended periods of time.  MitoAction’s Mito411 line is always available for support via email or phone at 1-888-MITO-411 (648-6411).  Various local non-profit organizations also exist for in-person support, such as local Parent to Parent affiliates.  Ideally, hospitals and complex care practices also provide opportunities for outside support so families don’t feel so dependent on the medical community to fill that void. Hospitals usually have social workers who can direct families to appropriate resources that can provide in-person support, and primary care physicians might also know of resources.  Identifying such resources in advance of a hospitalization will lessen stress significantly when a crisis emerges.

  • Communicating Effectively with Medical Professionals
  • Medical Records
  • Mito Navigator Toolkit
  • Mito Sick Protocol
  • Planning for Emergencies
  • Primary Care Physician Involvement and Interaction
  • Relationships with Medical Professionals in the Hospital
  • Transitioning Your Care Team

Upcoming
Events

View All
Jun 4
7:00 pm - 8:00 pm

Traveling with an FAOD

Jun 8
8:15 am - 9:45 am Event Series

FAOD Monthly Support Call

Jun 9
12:00 pm - 1:00 pm Event Series

Weekly Support Call

View Calendar

Expert
Series

View All

Upcoming Presentations

  • There are no upcoming events.

Last Presentation

Pyruvate Dehydrogenase, Compassionate Use & Clinical Trials
Presented April 17, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

  • Support
  • Resources
  • Donate
  • Events
  • Subscribe
©2023 MitoAction. All Rights Reserved. Website by ThinkGenetic, Inc.

Privacy Policy. Terms of Use.