Energy In Action Podcast
Our new podcast series, Energy In Action will consist of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research and the advancement of therapies.
If you would like to be a guest or suggest a topic, please email us at info@mitoaction.org.
You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.
Fight – Research – Hope – Cure
Date: 09/16/2021Speaker: Cure Mito Foundation
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A LC-FAOD Treatment from Ultragenyx and Available Resources – for US members only
Date: 08/25/2021Speaker: Bridget Reineking & Sylvia Mills
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Giving You the Power to Take Control of Your Healthcare Journey While Moving Mito Research
Date: 07/02/2021Speaker: Kira Mann & David Williams
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Having a Voice That Deserves To Be Heard
Date: 05/26/2021Speaker: Rare Patient Voice
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Patients as Partners in Ultragenyx LC-FAOD Research
Date: 05/12/2021Speaker: Emil Kakkis & Jessica Riviere
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Caregiver Toolboxes…A Lifeline and Support
Date: 04/22/2021Speaker: Caregivers Action Network
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A Mom and Daughter’s Journey With Mito!
Date: 04/12/2021Speaker: Kari & Hailee Fobar
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Lifeline: It’s More Than What You Think
Date: 04/03/2021Speaker: The Oley Foundation
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Adventure Awaits…A Teen’s Inspiring Journey with Mito
Date: 03/19/2021Speaker: Annie Leeds
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The Effects of Having a Diagnosis of TK2
Date: 03/10/2021Speaker: Mark Jensen & Dagmar Amtmann
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Making Your Voice Heard Through Song
Date: 03/03/2021Speaker: Hear Your Song
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