Energy In Action Podcast
Our new podcast series, Energy In Action will consist of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research and the advancement of therapies.
If you would like to be a guest or suggest a topic, please email us at info@mitoaction.org.
You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.
Parents as Rare: Parenting with VCP Disease
Date: 11/17/2021Speaker: Nathan Peck
Listen Now: Click Here
Parents as Rare – Emma & Spencer: The Heart of Parents as Rare
Date: 10/20/2021Speaker: Emma & Spencer Johnson
Listen Now: Click Here
Making Wishes Come True – A Partnership with Give Kids the World Village
Date: 10/06/2021Speaker: Give Kids the World Village
Listen Now: Click Here
Community Collaboration to Push Clinical Trials Forward
Date: 09/22/2021Speaker: AllStripes & Cyclerion
Listen Now: Click Here
Fight – Research – Hope – Cure
Date: 09/16/2021Speaker: Cure Mito Foundation
Listen Now: Click Here
A LC-FAOD Treatment from Ultragenyx and Available Resources – for US members only
Date: 08/25/2021Speaker: Bridget Reineking & Sylvia Mills
Listen Now: Click Here
Giving You the Power to Take Control of Your Healthcare Journey While Moving Mito Research
Date: 07/02/2021Speaker: Kira Mann & David Williams
Listen Now: Click Here
Having a Voice That Deserves To Be Heard
Date: 05/26/2021Speaker: Rare Patient Voice
Listen Now: Click Here
Patients as Partners in Ultragenyx LC-FAOD Research
Date: 05/12/2021Speaker: Emil Kakkis & Jessica Riviere
Listen Now: Click Here