Energy In Action Podcast

Our new podcast series, Energy In Action will consist of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research and the advancement of therapies.

If you would like to be a guest or suggest a topic, please email us at info@mitoaction.org.


You can also find these presentations in our Spotify, Google Podcasts, Apple Podcast and Amazon Music podcast library.

Parents as Rare: Parenting with VCP Disease
Date: 11/17/2021
Speaker: Nathan Peck
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The MitoSantas Program
Date: 11/11/2021
Speaker: MitoSanta Elves
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The Mito Girl
Date: 11/03/2021
Speaker: Daniela Gallo
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Parents as Rare – Emma & Spencer: The Heart of Parents as Rare
Date: 10/20/2021
Speaker: Emma & Spencer Johnson
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Rare New England Annual Conference
Date: 10/13/2021
Speaker: Julie Gortze
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Making Wishes Come True – A Partnership with Give Kids the World Village
Date: 10/06/2021
Speaker: Give Kids the World Village
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Trailer – Parents as Rare
Date: 09/29/2021
Speaker: Adam Johnson
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Community Collaboration to Push Clinical Trials Forward
Date: 09/22/2021
Speaker: AllStripes & Cyclerion
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Fight – Research – Hope – Cure
Date: 09/16/2021
Speaker: Cure Mito Foundation
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Another Helping
Date: 09/08/2021
Speaker: Emma Johnson
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A LC-FAOD Treatment from Ultragenyx and Available Resources – for US members only
Date: 08/25/2021
Speaker: Bridget Reineking & Sylvia Mills
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Giving You the Power to Take Control of Your Healthcare Journey While Moving Mito Research
Date: 07/02/2021
Speaker: Kira Mann & David Williams
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Having a Voice That Deserves To Be Heard
Date: 05/26/2021
Speaker: Rare Patient Voice
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Patients as Partners in Ultragenyx LC-FAOD Research
Date: 05/12/2021
Speaker: Emil Kakkis & Jessica Riviere
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One Step Closer
Date: 05/07/2021
Speaker: MitoCanada
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