• Facebook
  • Instagram
  • Twitter

Get Support – Call 1-888-MITO-411

  • Shop
  • Events
  • Donate
MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • FAOD Resources
      • International Metabolic Conference
  • Programs & Support
    • Support
      • Mito411
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • MitoChampions
      • Support Calls
      • Positive Peach Packages
    • Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund
      • Marcel’s Way Family Fund
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Resources & Planning
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate
      • Honor and Memorial Giving
      • Another Helping
      • Matching Gifts
      • Shop for MitoAction
      • Giving Tuesday – Ways to Give
    • Events
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • MitoChampions
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Light a Light
      • Open Mito Mic & Art Show
  • About Us
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
    • Newsletter Signup
  • Show Search

Medical Nutrition Equity Act

Print Friendly, PDF & Email

Important federal legislation was reintroduced to both the Senate and House of Representatives this summer and we need your help to get it passed! This legislation will help reduce healthcare costs in our community. The Medical Nutrition Equity Act (Senate Bill 2013 and House Bill 3783) is bipartisan legislation that will guarantee all health insurance plans cover medically necessary nutrition for a specific set of digestive disorders, inherited metabolic disorders (ie PKU and FAODs) and inherited disorders of mitochondrial functioning. This bill is narrowly focused and guarantees insurance coverage of important items in our community such as medical formula (ie monogen, lipistart, and portagen) and special vitamins/supplements prescribed by doctors (ie components of your “mito-cocktail”).

If you have never heard of this legislation, click here to learn more!

Click here to see if your legislator has already co-sponsored the bill!

If you do not see your Senators and/or your Representative in congress listed as a co-sponsor we need your help to make this happen!! Your legislators want to hear from YOU, their constituents! This bill cannot move forward without more co-sponsors!

Write a letter to BOTH Senators and your Representatives in congress!

If you have never done this before, click here and prompts will walk you through the process!

CALL and leave a message at your legislators’ DC offices!

This is one of the most important things that you can do and it is SO simple!  To find your two Senators’ DC office numbers, click here and to find your House of Representatives’ DC office number, click here. 

When you call say: “I am calling because the Medical Nutrition Equity Act (House Bill 3783 /Senate Bill 2013) is really important to me and I would like —(Senator/Representative Name)— to co-sponsor this bill!”  

If you want to be extra helpful, ask for the “Health Legislative Assistant’s email address” and e-mail them a follow up letter sharing that you really want your Senator/ Representative to co-sponsor this bill!

  • Medical Nutrition Equity Act
  • Mito Cocktail Bill

Upcoming
Events

View All
Dec 7
December 7 - December 15

Hanukkah

Dec 12
8:30 pm - 9:30 pm Event Series

Our Space: A space for young adults with Mito and FAODs to connect and network

Dec 14
8:15 pm - 9:30 pm Event Series

FAOD Monthly Evening Support Call

View Calendar

Expert
Series

View All

Upcoming Presentations

Jan 12
12:00 pm - 2:30 pm

2024 Mito Town Meeting

View Calendar

Last Presentation

Expert Series: Ceramides: The Unmasked Drivers of VLCADD-Induced Heart Failure
Presented November 15, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

  • Support
  • Resources
  • Donate
  • Events
  • Subscribe
©2023 MitoAction. All Rights Reserved. Website by ThinkGenetic, Inc.

Privacy Policy. Terms of Use.