News & Press Releases

MitoAction’s Statement on Nationwide Closures of Mitochondrial Disease Clinics

In the past year, the mitochondrial disease community has witnessed the closing of five clinics specializing in the treatment...

MitoAction Submits Comment to FDA on Proposed Changes to Compounding Pharmacy Regulations

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding concerning...

MitoAction and Care3 Announce Global Innovation Partnership Focused on Mitochondrial Disease

June 12, 2018 (Boston, MA) – MitoAction (www.mitoaction.org), a leading patient advocacy organization within the mitochondrial disease community and...

Advocating Responsibly and Communicating Effectively

Mannie Taimuty-Loomis, MA, LBS and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and...

Counselors Lift up this Mito Camper

This Daredevil Inspires His Team

Alexion Pharmaceuticals and Stealth Announce Agreement for Option to Co-Develop and Commercialize Late-Stage Therapy for Mitochondrial Diseases

Stealth BioTherapeutics Presents Data for Elamipretide on Cardiac Function in Barth Syndrome

MitoAction’s Statement on Nationwide Closures of Mitochondrial Disease Clinics

MitoAction Submits Comment to FDA on Proposed Changes to Compounding Pharmacy Regulations

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Nadrich Sisters Feel the Magic of Double H Ranch