This episode highlights a simple but powerful idea: placing families in real homes—not hotels—during some of the most …
Energy in Action Podcast Episode 156: Honoring Katie: The Rare Disease Friendships That Change Everything
In this deeply emotional conversation, Stephanie and Tasia reflect on the unique bond formed through rare disease, the …
Energy in Action Podcast Episode 155: Why Mito Care Is Finally Changing
In this episode of Energy in Action, she shares the path that led her from growing up in Colombia—where she was first …
Energy in Action Podcast Episode 154: How Mighty Matthew Keeps Moving Forward
In this episode of Energy in Action, he shares his long diagnostic journey, from missed milestones and years of invasive …
Energy in Action Podcast Episode 153: Supporting Siblings in Rare Disease Families
In this episode of Energy in Action, host Marcy Young speaks with Ryan about her path from a high school genetics class …
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