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Resource Type: Podcasts


TJ Strong

ENERGY IN ACTION – EPISODE 058 TJ Strong Jackie Bautz is the sibling to TJ, who has a mitochondrial disease called MELAS. She shares the story about her brother’s...



Top 10 Tips for Empowerment & Being Your Own Advocate

ENERGY IN ACTION – EPISODE 051 Top 10 Tips for Empowerment & Being Your Own Advocate Cristy Balcells is the Associate Director of Patient Advocacy and Public Policy for...


Dr. Stephanie Mihalas – Find Your Balance, Find Your Center

PARENTS AS RARE – EPISODE 055 Dr. Stephanie Mihalas – Find Your Balance, Find Your Center Dr. Stephanie Mihalas is a licensed psychologist, nationally certified school psychologist and a...


Advocate Like a Father

ENERGY IN ACTION – EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part of the mitochondrial disease community...


Lisa Weinberger – Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions

PARENTS AS RARE – EPISODE 052 Lisa Weinberger – Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions  Lisa Weinberger is...


Living Rare – An Adult’s Perspective

ENERGY IN ACTION – EPISODE 049 Living Rare – An Adult’s Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency, a type of fatty acid...


Parents as Rare: Parenting & Living Life With Chronic Pain

PARENTS AS RARE – EPISODE 048 Parenting & Living Life With Chronic Pain – Ross McCreery  Ross McCreery is a dad, husband, advocate, writer and speaker. In 2006, Ross...


The Strength of a Mom

ENERGY IN ACTION – EPISODE 047 The Strength of a Mom Tonie DeLorenze is impacted by mitochondrial disease herself and also has three children with mitochondrial disease.    ...


Parents as Rare – Family Coping, Communication, & Mental Health Resources – Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics – Stanford University

PARENTS AS RARE – EPISODE 046 Family Coping, Communication, & Mental Health Resources – Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics – Stanford University Dr. Jennifer Young is a...