ENERGY IN ACTION – EPISODE 051 Top 10 Tips for Empowerment & Being Your Own Advocate Cristy Balcells is the Associate Director of Patient Advocacy and Public Policy for...
PARENTS AS RARE – EPISODE 055 Dr. Stephanie Mihalas – Find Your Balance, Find Your Center Dr. Stephanie Mihalas is a licensed psychologist, nationally certified school psychologist and a...
ENERGY IN ACTION – EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part of the mitochondrial disease community...
PARENTS AS RARE – EPISODE 052 Lisa Weinberger – Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions Lisa Weinberger is...
ENERGY IN ACTION – EPISODE 049 Living Rare – An Adult’s Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency, a type of fatty acid...
PARENTS AS RARE – EPISODE 048 Parenting & Living Life With Chronic Pain – Ross McCreery Ross McCreery is a dad, husband, advocate, writer and speaker. In 2006, Ross...
ENERGY IN ACTION – EPISODE 047 The Strength of a Mom Tonie DeLorenze is impacted by mitochondrial disease herself and also has three children with mitochondrial disease. ...
PARENTS AS RARE – EPISODE 046 Family Coping, Communication, & Mental Health Resources – Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics – Stanford University Dr. Jennifer Young is a...