PARENTS AS RARE – EPISODE 076 Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance Dr. Neena Nizar started the #rarediseasetruth movement. She was misdiagnosed for...
ENERGY IN ACTION – EPISODE 075 Dalia’s Wish Makes Dreams Come True for the Del Forno Family Nicole Del Forno is the mom of Gloria. Her family recently went...
PARENTS AS RARE – EPISODE 074 Exploring Palliative Care Kimberly Matias, a social worker, and Michelle Hurty, a physician assistant, join me for an exploratory conversation about palliative...
PARENTS AS RARE – EPISODE 070 Meeting My MELAS Mito Friend – Elizabeth Wood I met Elizabeth Wood, a fellow mito patient, through connections at Mito Action. Elizabeth...
ENERGY IN ACTION – EPISODE 069 Give Kids the World with Justin Kiser Justin Kiser is a dad to Riley, who is five years old and has a rare...
PARENTS AS RARE – EPISODE 068 Special Episode – Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc....
ENERGY IN ACTION – EPISODE 067 What’s It Like Being a Research Patient with UDN – Ted Will Tell You In addition to being the host of the Energy...
ENERGY IN ACTION – EPISODE 066 Alex is in her second year of college at Texas Tech where she is studying...
PARENTS AS RARE – EPISODE 065 Tara Zier – Stiff Person Syndrome Research Foundation and Finding Your Purpose Tara Zier is a rare disease patient, mother and the Founder...