EPISODE HIGHLIGHTS
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EPISODE HIGHLIGHTS
Elizabeth Reynolds is a mom of three children and her oldest, William, has Pearson syndrome, a …
EPISODE HIGHLIGHTS
Tasia, can you tell us about yourself and the work you do?
I'm 31 and I was diagnosed at a …
PARENTS AS RARE - EPISODE 095
Patient Stories from the FAOD Community - Live from the IMC
In this special, …
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug …