Barth Syndrome – When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development Barth Syndrome Foundation Executive Director Emily Milligan, and Director of Family Services […]
Energy in Action Podcast Episode 93: Navigating school for our kiddos!
Navigating School for Our Kiddos Beth Folcher is a parent and teacher. She joins us to kick off the school year with tips for parents of children with mitochondrial conditions […]
Parents as Rare Podcast Episode 92: Patient Stories from the FAOD Community – Live from the IMC
PARENTS AS RARE – EPISODE 092 Patient Stories from the FAOD Community – Live from the IMC I encouraged the FAOD community attending the 2023 Metobolic Conference in Denver, CO […]
Energy in Action Podcast Episode 91: Hailee The Mito Warrior
Hailee The Mito Warrior Hailee is the Ultimate Mito Warrior. She has such a positive attitude, despite the challenges she experiences on a daily basis. She works to create awareness […]
Energy in Action Podcast Episode 90: TK2d Warrior Jeremiah Gracen
ENERGY IN ACTION – EPISODE 90 Jeremiah Gracen TK2D Warrior with Mom Aneesa Aneesa is the mom to Jeremiah, a beautiful, wonderful and special boy within our mitochondrial community. Aneesa […]
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