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Resource Type: Podcasts


Meet the Bartles

ENERGY IN ACTION – EPISODE 060 Meet the Bartles Jake and Cami Bartle have been married for three years and they join us to share their rare disease experience...


Owning My Story

PARENTS AS RARE – EPISODE 059 Owning My Story  Adam Johnson’s world was turned upside down when he went from being a healthy 35 year old with an exciting...


Life with Leigh’s

ENERGY IN ACTION – EPISODE 058 Life with Leigh’s Krista Price is the mom of two children with Leigh’s Syndrome. She shares her diagnosis journey and speaks to the...


TJ Strong

ENERGY IN ACTION – EPISODE 058 TJ Strong Jackie Bautz is the sibling to TJ, who has a mitochondrial disease called MELAS. She shares the story about her brother’s...



Top 10 Tips for Empowerment & Being Your Own Advocate

ENERGY IN ACTION – EPISODE 051 Top 10 Tips for Empowerment & Being Your Own Advocate Cristy Balcells is the Associate Director of Patient Advocacy and Public Policy for...


Dr. Stephanie Mihalas – Find Your Balance, Find Your Center

PARENTS AS RARE – EPISODE 055 Dr. Stephanie Mihalas – Find Your Balance, Find Your Center Dr. Stephanie Mihalas is a licensed psychologist, nationally certified school psychologist and a...


Advocate Like a Father

ENERGY IN ACTION – EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part of the mitochondrial disease community...


Lisa Weinberger – Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions

PARENTS AS RARE – EPISODE 052 Lisa Weinberger – Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions  Lisa Weinberger is...


Living Rare – An Adult’s Perspective

ENERGY IN ACTION – EPISODE 049 Living Rare – An Adult’s Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency, a type of fatty acid...