ENERGY IN ACTION – EPISODE 060 Meet the Bartles Jake and Cami Bartle have been married for three years and they join us to share their rare disease experience...
PARENTS AS RARE – EPISODE 059 Owning My Story Adam Johnson’s world was turned upside down when he went from being a healthy 35 year old with an exciting...
ENERGY IN ACTION – EPISODE 058 Life with Leigh’s Krista Price is the mom of two children with Leigh’s Syndrome. She shares her diagnosis journey and speaks to the...
ENERGY IN ACTION – EPISODE 051 Top 10 Tips for Empowerment & Being Your Own Advocate Cristy Balcells is the Associate Director of Patient Advocacy and Public Policy for...
PARENTS AS RARE – EPISODE 055 Dr. Stephanie Mihalas – Find Your Balance, Find Your Center Dr. Stephanie Mihalas is a licensed psychologist, nationally certified school psychologist and a...
ENERGY IN ACTION – EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part of the mitochondrial disease community...
PARENTS AS RARE – EPISODE 052 Lisa Weinberger – Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions Lisa Weinberger is...
ENERGY IN ACTION – EPISODE 049 Living Rare – An Adult’s Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency, a type of fatty acid...