PARENTS AS RARE – EPISODE 073 Challenging The Status Quo – Robin Powers Robin Powers is a mother who has a rare disease and she’s raising a son who has […]
CDC New Opioid Guideline – What This Means for the Mito Community
Learn about the new draft CDC Opioid Guideline, how it impacts the mito community and how you can raise your voice to address important topics still to be decided by […]
Sick Day & Emergency Protocols: Helpful & Potentially Harmful
Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the importance/challenges of protocol letters within the mitochondrial disease community.
Preparing For a New Normal in COVID-19 and Being Your Best Advocate
The Power of Rare Disease Advocacy
Advocates are the key to creating real change. Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare […]
