PARENTS AS RARE – EPISODE 073 Challenging The Status Quo – Robin Powers Robin Powers is a mother who has a rare disease and she’s raising a son who has […]
Learn about the new draft CDC Opioid Guideline, how it impacts the mito community and how you can raise your voice to address important topics still to be decided by […]
Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the importance/challenges of protocol letters within the mitochondrial disease community.
Advocates are the key to creating real change. Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare […]