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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Challenging the Status Quo

Mar 1, 2023

PARENTS AS RARE – EPISODE 073 Challenging The Status Quo – Robin Powers  Robin Powers is a mother who has a rare disease and she’s raising a son who has […]

advocacy, mito parent, parenting, parents as rare, podcast

CDC New Opioid Guideline – What This Means for the Mito Community

Apr 1, 2022

Learn about the new draft CDC Opioid Guideline, how it impacts the mito community and how you can raise your voice to address important topics still to be decided by […]

Sick Day & Emergency Protocols: Helpful & Potentially Harmful

Feb 4, 2022

Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the importance/challenges of protocol letters within the mitochondrial disease community.

Preparing For a New Normal in COVID-19 and Being Your Best Advocate

Aug 5, 2020

The Power of Rare Disease Advocacy

Feb 7, 2020

Advocates are the key to creating real change.  Learn the power that you as a patient and caregiver have, what you can do to move the needle for your rare […]

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Upcoming
Events

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Sep 17
September 17 @ 8:00 am - September 24 @ 5:00 pm

Awareness Week

Sep 24
5:00 pm - 9:00 pm

Energy Walk – Boston

Sep 27
8:00 pm - 9:00 pm Event Series

Wondering Wednesdays: Ask the Genetic Counselor

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Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

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Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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