Advocates are the key to creating real change. Learn the power that you as a patient and caregiver have, what you …
NORD Public Policy Team
A conversation with the public policy team for the National Organization for Rare Disorders (NORD).
Topics of …
Medical Ethics and Patient Rights
Advocating Responsibly and Communicating Effectively
During a time when families with children with mitochondrial disease may face accusations of medical child abuse or …
Becoming a Great Advocate: Advice for Complex Patients and Families
Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN.
Adult …
