Join us for a virtual Patient and Family Social for Louisiana, Arkansas, Mississippi, Alabama and surrounding areas on March 8th at 6:30pm CST. If you geographically located in one of […]
Challenging the Status Quo
PARENTS AS RARE – EPISODE 073 Challenging The Status Quo – Robin Powers Robin Powers is a mother who has a rare disease and she’s raising a son who has […]
Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance
PARENTS AS RARE – EPISODE 076 Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance Dr. Neena Nizar started the #rarediseasetruth movement. She was misdiagnosed for decades, […]
Granting Wishes One Trip at a Time
ENERGY IN ACTION – EPISODE 069Give Kids the World with Justin Kiser Justin Kiser is a dad to Riley, who is five years old and has a rare form of […]
7 Simple Strategies for Sibling Support
Siblings of children with disabilities play important roles in their families, and often experience similar concerns and opportunities as parents. This session will present some common issues that siblings experience […]
