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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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MitoSocial

Mar 2, 2023

Join us for a virtual Patient and Family Social for Louisiana, Arkansas, Mississippi, Alabama and surrounding areas on March 8th at 6:30pm CST. If you geographically located in one of […]

Challenging the Status Quo

Mar 1, 2023

PARENTS AS RARE – EPISODE 073 Challenging The Status Quo – Robin Powers  Robin Powers is a mother who has a rare disease and she’s raising a son who has […]

advocacy, mito parent, parenting, parents as rare, podcast

Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance

Mar 1, 2023

PARENTS AS RARE – EPISODE 076 Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance Dr. Neena Nizar started the #rarediseasetruth movement. She was misdiagnosed for decades, […]

patient stories, podcast, rare disease

Granting Wishes One Trip at a Time

Nov 2, 2022

ENERGY IN ACTION – EPISODE 069Give Kids the World with Justin Kiser Justin Kiser is a dad to Riley, who is five years old and has a rare form of […]

7 Simple Strategies for Sibling Support

Jun 17, 2022

Siblings of children with disabilities play important roles in their families, and often experience similar concerns and opportunities as parents. This session will present some common issues that siblings experience […]

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Upcoming
Events

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Sep 27
8:00 pm - 9:00 pm Event Series

Wondering Wednesdays: Ask the Genetic Counselor

Sep 28
1:00 pm - 2:30 pm

FAOD Monthly Afternoon Support Call

Sep 29
12:00 pm - 1:00 pm Event Series

Weekly Support Call

View Calendar

Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

View Calendar

Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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