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Patient Stories


Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc

PARENTS AS RARE – EPISODE 068 Special Episode – Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc....


What’s It Like Being A Research Patient with the UDN? Ted Perron Shares his Story

ENERGY IN ACTION – EPISODE 067 What’s It Like Being a Research Patient with UDN – Ted Will Tell You In addition to being the host of the Energy...


Parenting with Sarcoidosis & Discussing the Global Genes 2022 Rare Patient Advocacy Summit

PARENTS AS RARE – EPISODE 062 Mary Morlino – Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino is the Rare Concierge Patient...


Teen Interview with Annalise

Teen Interview with Annalise.


Teen Interview with Kristin

Teen Interview with Kristin.


Teen Interview with Donovan

Teen Interview with Donovan.


Teen Interview with Morgan

Teen Interview with Morgan.


Teen Interview with Reed

Teen Interview with Reed


Teen Interview with Olivia

Teen Interview with Olivia.


Teen Interview with Harrison

Teen Interview with Harrison.