PARENTS AS RARE – EPISODE 095 Patient Stories from the FAOD Community – Live from the IMC In this special, live-recorded episode, rare moms attending the 2023 Metobolic Conference share […]
Parents as Rare Podcast Episode 92: Patient Stories from the FAOD Community – Live from the IMC
PARENTS AS RARE – EPISODE 092 Patient Stories from the FAOD Community – Live from the IMC I encouraged the FAOD community attending the 2023 Metobolic Conference in Denver, CO […]
Energy in Action Podcast Episode 91: Hailee The Mito Warrior
Hailee The Mito Warrior Hailee is the Ultimate Mito Warrior. She has such a positive attitude, despite the challenges she experiences on a daily basis. She works to create awareness […]
PARENTS AS RARE – EPISODE 83
A Painful Identity – Renuka Dhinakaran Renuka Dhinakaran is an international labor lawyer, mom, chronic illness patient and an incredible patient advocate. EPISODE HIGHLIGHTS Will you start with sharing about […]
Energy in Action Podcast Episode 80: Jireh Somera – Fabry Fighter
PARENTS AS RARE – EPISODE 080 Jireh Somera – Fabry Fighter Jireh Somera is a husband, father and Fabry fighter. While our rare disease journeys have been different, we share […]
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