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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Energy in Action Podcast Episode 94: Barth Syndrome – When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development

Sep 11, 2023

Barth Syndrome – When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development Barth Syndrome Foundation Executive Director Emily Milligan, and Director of Family Services […]

barth syndrome, energy in action, podcast, ultra-rare drug development

Expert Series: Rhabdo Roundtable for Teens & Young Adults with an FAOD

Aug 1, 2023

Rhabdomyolysis can feel like being lost without a road map leading you home. Join us for an informal session to discuss personal experiences with rhabdo, from symptoms to recovery. Physical […]

expert series, faod, rhabo, rhobdomyolosis

Community Update: Fatty Acid Oxidation Treatments & Growing Options

Oct 14, 2022

Dr. Jerry Vockley provides updates on the latest in therapy development for the FAOD community at the 2022 International Metabolic Conference.

MELAS Spectrum Disorders and Sonlicromanol: Progress Update

Feb 16, 2022

Join MitoAction and Dr. Jan Smeitink, CEO of Khondrion for our our March Expert Series presentation. MELAS spectrum (m.3243A>G) disorders belong to the most frequently encountered group of primary mitochondrial […]

The Mito Cocktail Revisited

Oct 11, 2021

Join MitoAction and Acton Pharmacy’s Clinical Pharmacist, Ted Toufas as we revisit and provide the latest updates about the mito cocktail! The mito cocktail is one of the front-line treatment […]

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Upcoming
Events

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Sep 17
September 17 @ 8:00 am - September 24 @ 5:00 pm

Awareness Week

Sep 24
5:00 pm - 9:00 pm

Energy Walk – Boston

Sep 27
8:00 pm - 9:00 pm Event Series

Wondering Wednesdays: Ask the Genetic Counselor

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Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

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Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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