There are two new MCADD trials that have started in recent months. One explores the use Dojolvi (triheptanoin) and the …
Energy in Action Podcast Episode 97: The Champ Foundation
EPISODE HIGHLIGHTS
Elizabeth Reynolds is a mom of three children and her oldest, William, has Pearson syndrome, a …
Energy in Action Podcast Episode 96: Employed with Mito Disease
EPISODE HIGHLIGHTS
Tasia, can you tell us about yourself and the work you do?
I'm 31 and I was diagnosed at a …
Energy in Action Podcast Episode 94: Barth Syndrome – When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug …
Expert Series: Rhabdo Roundtable for Teens & Young Adults with an FAOD
Rhabdomyolysis can feel like being lost without a road map leading you home. Join us for an informal session to discuss …
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