Sailor Isabel Assis

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Sailor was our firstborn and the light of our lives. We loved our little princess more than anything. Sailor had troubles when she was first born but after several tests and her miraculously recovering we thought it was just a little mishap and our precious baby was healthy. But at 7 months she started having problems again and she rapidly deteriorated over the next few months. The morning we received the diagnosis of Leigh’s syndrome she had troubles breathing and was rushed by ambulance to the PICU. She was intubated and after 3 weeks we had to make the heart-wrenching decision to remove life support. We miss and love her more every day.