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Monthly Mito Expert Series

by GingerD
Join us on Thursday, March 2 at 3 p.m. EST/Noon PST as Greg Macpherson, CEO of MitoQ, discusses "Mitochondria and MitoQ: A Research Update."

MitoQ's mission is to raise awareness of mitochondria and the link between optimal mitochondria function, health, and longevity.

Topics of discussion include:

Feb 14, 2017 Comments: 0
by GingerD

Kayla West’s cousins have mitochondrial disease. “I helped them feel like normal kids,” she said. “That’s what they wanted.”Kayla spent two years helping to take care of her cousins before her family moved from Washington to Texas. She would make sure they didn’t get too hot; she hooked them up to their heart monitors, oxygen, and feeding tubes before bed; she played with them; and she carried them if they needed it. “They became a huge part of my life,” she said.

Feb 07, 2017 Comments: 0
by GingerD
Nov 30, 2016 Comments: 0
by GingerD
Join us on Friday, Dec. 2 at noon EST/9 a.m. PST as Mark Tarnopolsky MD, PhD, FRCP(C) discusses exercise and nutrition therapy for mitochondrial disease.Dr.
Nov 23, 2016 Comments: 0
by GingerD

This is a joint message between MitoAction, UMDF, and the Foundation for Mitochondrial Medicine for the benefit of the mitochondrial disease community.

Patients, parents, and families -- please join us Tuesday, Dec. 6, 2016 at Noon EST (9 a.m. PST) by teleconference for a discussion of data from Stealth BioTherapeutics' Mitochondrial Myopathy clinical trial.

Nov 10, 2016 Comments: 0
by GingerD

The groom and groomsmen wore BowTie Cause MitoAction bowties. The bridesmaids wore green. Every guest got a MitoAction bracelet. Even the wedding invite was green and included the Mito ribbon.

The bride, Devon Gottfurcht, has mitochondrial disease and she used her wedding to Dan DeSario as a vehicle to raise awareness about Mito. “There’s not a lot of awareness for mitochondrial disease,” she said.

Oct 26, 2016 Comments: 0
by GingerD
Join us on Friday, Nov. 4 at noon EST/9 a.m. PST as Cheryl M.
Oct 25, 2016 Comments: 0
by GingerD
Join us on Friday, Oct. 7 at noon EST (9 a.m. PST) as Dr. Darius Adams, a clinical geneticist, discusses molecular diagnostic testing for mitochondrial disorders.Dr.
Sep 29, 2016 Comments: 0
by GingerD
Join us on Friday, Aug. 5 at noon EDT as patient advocate Kristi Wees discusses medical homes for Mito patients.Topics include:
Jul 25, 2016 Comments: 0
by GingerD

After Jessica Gemayel lost her battle with mitochondrial disease a few months ago, her friends gathered to figure out what they could do in her memory.

Courtney Brown, Jessica’s best friend since middle school, and the rest of their gang decided to form Team Jess for the MitoAction Energy Walk & 5K presented by Stealth BioTherapeutics on Sunday, Sept. 18.

Jun 17, 2016 Comments: 0

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