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MITO Awareness Overview

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 Be an advocate for MitoAction!

Every year during the third week of September, patients, families, and friends from around the world galvanize their efforts as one for Mitochondrial Disease Awareness Week. But there are opportunities all year round to raise awareness. Every holiday, every season presents a chance to take advantage of all the resources that are available to you.  MitoAction invites you to celebrate and honor the lives of every child, adult, and family who struggles with the devastating diagnosis of Mito by becoming an advocate and participating in or hosting an awareness event.  For more ideas, visit

Advocacy is a major component of MitoAction's mission. Advocates are people with mitochondrial disease, caregivers, friends and families whose voices together can help improve the lives of those living with mitochondrial disease.

Get involved and make your voice heard!

What You Can Do: Join MitoAction in our mission to educate and raise awareness of this disabling disease.

  • Join our awareness campaign. MitoAction is asking patients, families, and the community to invest in the lives of those affected by mitochondrial disease by pledging to share mitochondrial disease education materials with at least 10 doctors, teachers, and community leaders this year.  To request your free awareness kit and pledge to raise awareness, please contact
  • Host a Mito Patient & Family Social.
  • Organize your own awareness walk or event.
  • Set up restaurant charity night.
  • Suggest story ideas to your local newspaper or Patch site.
    Click here for our Awareness Ideas Manual.


"Light a Light for Mito"

 Officially on the third Wednesday of every September, families and friends are encouraged to "Light a Light for Mito" in honor and in memory of the babies, children and adults who have lost their battle with mitochondrial disease.  We honor our loved ones every day and we will add to our Light A Light for Mito page at any time.

Click here to send a free e-card in honor of this day! 




By becoming an advocate for MitoAction you will help to:

  • Increase awareness of mitochondrial disease.
  • Enhance and improve family care and support issues.
  • Empower families and clinicians to be involved and educate and support others.
  • Promote public policies that address the research and healthcare needs of the mitochondrial disease community.

We invite you to become an advocate and use your energy to make a difference in our fight against mitochondrial disease.  Please take a look here at more awareness and fundraising ideas for your community.


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About Mito: Mitochondrial disease is an inherited chronic illness that causes debilitating physical, developmental, and mental disabilities. Anyone is vulnerable; you can be born with it or it can develop later in life. It’s progressive and there is no cure. About 1 in 2,000 people in the United States has mitochondrial disease.  Mito symptoms differ from person to person and can first appear in infants, children, teens, or adults. Common symptoms include poor growth, loss of muscle coordination, muscle weakness and pain, seizures, vision and/or hearing loss, gastrointestinal issues, learning disabilities, and heart, liver, or kidney failure. Mito is also related to autism, diabetes, Alzheimer’s, and Parkinson’s.

Questions and ideas welcome - email us!  (