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Advocacy Overview

ad·vo·ca·cy: The act of pleading or arguing in favor of something, such as a cause, idea, or policy; active support.

Call to Action
Let your voice be heard on Graham-Cassidy proposal

Senators Lindsey Graham (R-SC) and Bill Cassidy (R-LA) introduced new legislation in mid-September to repeal and replace the Affordable Care Act (ACA). The Graham-Cassidy proposal is more far-reaching than other recent Senate proposals and would negatively impact people living with mitochondrial disease and other chronic health conditions.

Specifically, the new proposal would:

  • Allow insurance companies to charge individuals with pre-existing health conditions more
  • Allow states to more easily opt out of requiring quality health insurance options and comprehensive benefits
  • Dramatically reduce the federal commitment to Medicaid expansion  

The proposal has quickly gained support and could be voted on next week. Contact your senators today and let your voice be heard regarding the Graham-Cassidy repeal and replace proposal. 

Here are four ways you can take action and #ProtectPatientsNow.



Stand with MitoAction and take ACTION during Mitochondrial Disease Awareness Week!


MitoAction's advocacy resources are designed to assist patients and families with the wide variety of non-medical issues they might encounter.  From disability law and insurance concerns to special education and even allegations of medical child abuse, those affected by Mito must wade through a broad spectrum of potential concerns.  MitoAction is here to help connect Mito patients and families with information and community resources that can make this journey a little easier.  

In addition to the web resources listed below, MitoAction hosts the Advocacy Podcast Series, which brings experts from the legal, legislative and advocacy world to the Mito community.   

Please click on the links to access information on each of the topics listed below.

Advocacy Podcast Series

Educational Advocacy


Munchausen Syndrome by Proxy & Medical Child Abuse

Massachusetts Mito Cocktail Mandate

Preparing for Emergencies

Special Needs and Disability Law

Cut the Red Tape

How to Contact Your Elected Officials