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by GingerD
‘She’s a gift to everyone who knows her’Ellie Kovalcik celebrates Sweet 16

Sweet 16. The Kovalcik family didn’t think they’d see this day. “Sixteen is a big deal, especially when we were told we’d lose [Ellie] between 7 and 8 years old,” said mom Kris. 

Dec 26, 2017 Comments: 0
by GingerD
Matthew Harty’s memory inspires donations

“There is no footprint too small to leave an imprint on this world.”Matthew Harty lost his battle with mitochondrial disease shortly after his 8th birthday in 2013, but he is still leaving an imprint today.“Matthew continues to make a difference,” said Angela Harty, Matthew’s grandma. “People still think about him. I feel like he’s not forgotten.”

Dec 15, 2017 Comments: 0
by GingerD
Matthew Harty Scholarship update: Erica Blanchette

Erica Blanchette was honored to be the first Matthew Harty Scholarship recipient. “I hope it inspires others with Mito,” she said at the time of the award in 2015. “This proves you can go to college and do other things that people never thought you could do."The daughter of Loree and Ralph Blanchette of Peabody, MA, has one year left on her early childhood degree from North Shore Community College in Danvers, MA.

Dec 15, 2017 Comments: 0
by GingerD
.Channeling ‘Dr. House’Student shares Mito research in educational video

The searing leg pain started in her junior year of high school. She was playing competitive club soccer, but the pain never subsided and she was forced to quit a sport she loves.

Nov 16, 2017 Comments: 0
by GingerD
Raising awareness -- one medical student at a time

“Her story and many experiences with physicians will serve as a guide to help make me a more empathic and humble physician.”

“You remind us that being a physician is more than merely diagnosing and treating illness; it is about seeing and understanding the patient as a person.”

Sep 12, 2017 Comments: 0
by GingerD
Students write book to raise awareness

Mighty Mito is not fun.Mighty Mito does not get things done.I can’t always play.I have to stay,even on the finest day.Some days are fun,when I have the energy to run.Some days are sad,when I just feel really bad.Even though I sometimes cannot run,

Sep 12, 2017 Comments: 0
by GingerD

Health and family issues kept Sheridan Johnston from attending the last few MitoAction Energy Walks but this year a healthier Sheridan is rarin’ to go!

Sheridan is thrilled to feel that walk “vibe” again. “There are no words to describe what it feels like to be a patient on that day,” she said. “There’s some sort of freedom on that day … being around people like me. There’s a camaraderie that’s instantly felt. We build each other up.”

Aug 02, 2017 Comments: 0
by GingerD

Kayla West’s cousins have mitochondrial disease. “I helped them feel like normal kids,” she said. “That’s what they wanted.”Kayla spent two years helping to take care of her cousins before her family moved from Washington to Texas. She would make sure they didn’t get too hot; she hooked them up to their heart monitors, oxygen, and feeding tubes before bed; she played with them; and she carried them if they needed it. “They became a huge part of my life,” she said.

Feb 07, 2017 Comments: 0
by GingerD

The groom and groomsmen wore BowTie Cause MitoAction bowties. The bridesmaids wore green. Every guest got a MitoAction bracelet. Even the wedding invite was green and included the Mito ribbon.

The bride, Devon Gottfurcht, has mitochondrial disease and she used her wedding to Dan DeSario as a vehicle to raise awareness about Mito. “There’s not a lot of awareness for mitochondrial disease,” she said.

Oct 26, 2016 Comments: 0
by GingerD

After Jessica Gemayel lost her battle with mitochondrial disease a few months ago, her friends gathered to figure out what they could do in her memory.

Courtney Brown, Jessica’s best friend since middle school, and the rest of their gang decided to form Team Jess for the MitoAction Energy Walk & 5K presented by Stealth BioTherapeutics on Sunday, Sept. 18.

Jun 17, 2016 Comments: 0

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