Events
Calendar of Events
|
Sunday
|
Monday
|
Tuesday
|
Wednesday
|
Thursday
|
Friday
|
Saturday
|
|---|---|---|---|---|---|---|
|
0 events,
|
0 events,
|
0 events,
|
0 events,
|
1 event, |
2 events,
-
Expert Series: Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails
Expert Series: Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails
As the incidence of mitochondrial disease continues to rise, patients having a better understanding surrounding their therapies remains critical. Compounding pharmacies play a key role in simplifying medication regimens while providing affordable options. This presentation will explore the importance of compounding pharmacies while highlighting how ACHC rare disease accredited compounding pharmacies employ clinical teams that support both […]
-
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […] |
0 events,
|
|
0 events,
|
0 events,
|
1 event, |
0 events,
|
2 events,We are thrilled to be collaborating with The POLG Foundation for this wonderful support call series! Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs. |
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
0 events,
|
1 event,
-
Writing as Healing workshops offer a safe, supportive space to express our thoughts and feelings through words, enabling us to process trauma, accept difficult news, and rebuild resilience. We are excited to have author Brad Buchanan back with us! He will share a poem from his recent book, “The Birds of Poverty Ridge” and we […] |
0 events,
|
0 events,
|
1 event,Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […] |
2 events,
-
IVDS is a biotech company developing a CPK meter called, CPK Now. This small, handheld device will allow patients to check their creatine kinase (CK) level quickly from a fingerstick sample, so they and their care team can react sooner and monitor their care more effectively. This presentation will discuss the science behind the technology, how this […] |
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
0 events,
|
|
0 events,
|
0 events,
|
1 event, |
1 event,Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone. |
0 events,
|
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
0 events,
|
|
0 events,
|
0 events,
|
0 events,
|
0 events,
|
1 event,Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
0 events,
|
