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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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MitoAction in the News

Navigating the FDA’s Complete Response Letter and identifying a path forwardfor SL1009 (DCA).

Emily Grandahl Apr 9, 2026

March 31, 2026

Dear Members of the PDCD Community,

We are deeply grateful for your support and advocacy throughout …

[Read more...]

MitoAction in the News, Mitochondrial Disease News, Press Releases

FDA Approval of KYGEVVI Marks a Defining Moment for Mitochondrial Disease Community and Families Affected by TK2d

Emily Grandahl Nov 5, 2025

FOR IMMEDIATE RELEASE

Contact:Emily GrandahlMarketing Coordinator, MitoActionemily@mitoaction.org(888) …

[Read more...]

MitoAction in the News, Mitochondrial Disease News, Press Releases

MitoAction’s Statement on Nationwide Closures of Mitochondrial Disease Clinics

Sarah Harty Oct 17, 2019

In the past year, the mitochondrial disease community has witnessed the closing of five clinics specializing in the …

[Read more...]

MitoAction in the News

MitoAction Submits Comment to FDA on Proposed Changes to Compounding Pharmacy Regulations

Sarah Harty Oct 17, 2019

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding …

[Read more...]

MitoAction in the News

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Upcoming Events

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Apr 15
3:00 pm - 7:00 pm

13th Annual Matthew Harty Mito Classic

Apr 15
7:00 pm

MitoChampions Meeting

Apr 16
6:00 pm - 7:00 pm

CPEO & Me

View Calendar

Expert Series

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Apr 16
7:00 pm - 8:00 pm

Expert Series: Direct to Consumer Genetic Testing 101

Apr 17
12:00 pm - 1:00 pm

Expert Series:  Eat Smart, Power Strong: Your Mitochondrial Nutrition Grade

View Calendar

Last Presentation

Expert Series: Direct to Consumer Genetic Testing 101
Presented March 15, 2026

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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