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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • FAOD Resources
      • International Metabolic Conference
  • Programs & Support
    • Support
      • Mito411
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    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Resources & Planning
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
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    • Giving
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      • International Metabolic Conference
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No matter where you are on your journey with mitochondrial disease, MitoAction is committed to connecting you with the most comprehensive resources available as well as a network of support. We exist to help you on your journey and to ensure you that you are not alone. Whether you are newly diagnosed, still unsure of your diagnosis, caring for a child living with mito, or a caregiver, family member, or friend, we are here for you.

Our comprehensive catalog of resources span from practical daily tips to information that may be helpful to a clinician seeing a mito patient for the first time. We aim to empower you to take control of your care and to be your own advocate while surrounding you with a like-minded community who are here to support you.

Mito Monthly Expert Series
Mito 411
Weekly Support Calls
MyMito App
New Patient Kit
Assistive Technology
Vehicle Modification
Keeping Your Cool: Cooling Vests
Advocating for Yourself and Your Child
The Spoon Theory
  • Advocating for Yourself and Your Child
  • Care Management
  • Exercise with Mito
  • Heat Intolerance
  • Holiday Tips
  • Living with Mitochondrial Disease
  • Managing Your Energy
  • Parents and Caregivers of Children with Mito
  • Patient Spotlight
  • Stress-Less Holidays
  • Traveling with Mito
  • Useful Resources

Upcoming
Events

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Sep 17
September 17 @ 8:00 am - September 24 @ 5:00 pm

Awareness Week

Sep 22
12:00 pm - 1:00 pm Event Series

Weekly Support Call

Sep 24
5:00 pm - 9:00 pm

Energy Walk – Boston

View Calendar

Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

View Calendar

Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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