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International Metabolic Conference

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About the Virtual Conference

The  2020 Virtual International Metabolic Conference sponsored by Ultragenyx Pharmaceuticals will be free of charge for parents, affected individuals, family members, and friends.  Professionals are also invited to attend for a small fee. This year’s conference will be held virtually on July 24, 25, & 26, 2020.  We are thrilled to partner with My City Med to provide a state-of-the art virtual conference experience for the FAOD community.

We are also excited to partner with Dr. Jerry Vockley and INFORM to bring to you a series of presentations by leading experts in fatty acid oxidation disorders to share diagnosis, treatment, care and clinical trial updates that are intended to help support you and give you access to resources and networking opportunities as you navigate your day-to-day with these disorders.

Speaker List

Dr. Jerry Vockley – INFORM
Dr. Melanie Gillingham – Oregon Health & Science University
Dr. Fran Kendall – VMP Genetics
Dr. Mark Korson – VMP Genetics
Annette Hines – Special Needs Law Group of MA

*full agenda coming soon*

Important Dates
  • June 10 – T-shirt designs are due. When you’re thinking of designs, think about “What does the FAOD community mean to you?” These can be emailed to info@mitoaction.org
  • June 15 – Registration deadline to receive an event t-shirt and event welcome package.
  • July 1 – Registration deadline to receive an event welcome package only.
  • July 20 – Cookbook recipes due. We are excited to share your favorite low-fat recipes with the rest of the FAOD community. Recipes can be submitted by clicking here.

For further updates, stay tuned to your email inbox, our MitoAction FAOD Families Facebook Group, the International Metabolic Conference Facebook Page and this page. You can continue to submit your t-shirt designs to info@mitoaction.org and submit your recipes here . We will be sending all attendees an exciting event welcome package!

 

Thank You to Our Sponsors!