PARENTS AS RARE – EPISODE 095 Patient Stories from the FAOD Community – Live from the IMC In this special, live-recorded episode, rare moms attending the 2023 Metobolic Conference share […]
International Metabolic Conference
Pandemic Lessons Learned from the Mitochondrial Disease Community
Pandemic Lessons Learned from the Mitochondrial Disease Community.
Transitioning from Pediatric to Adult Care
It can be a stressful time when your child is growing up and is ready to move from pediatric care to adult care – a new team, a new routine […]
Roadmap to Self-Care: Supporting Families and Caregivers of Children with Chronic Illness
Pamela Lane discusses ways to ensure the all members of your loved one’s family care team are supported throughout their care journey.
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