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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Challenging the Status Quo

Mar 1, 2023

PARENTS AS RARE - EPISODE 073

Challenging The Status Quo - Robin Powers 

Robin Powers is a mother who has a …

[Read more...]

advocacy, mito parent, parenting, parents as rare, podcast

Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance

Mar 1, 2023

PARENTS AS RARE - EPISODE 076 Dr. Neena Nizar - Share Your #RareDiseaseTruth & Give Love A Chance

Dr. Neena …

[Read more...]

patient stories, podcast, rare disease

Dalia’s Wish Makes Dreams Come True for the Del Forno Family

Mar 1, 2023

ENERGY IN ACTION - EPISODE 075

Dalia’s Wish Makes Dreams Come True for the Del Forno Family

Nicole Del Forno is …

[Read more...]

dalias wish, energy in action, podcast

Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc

Oct 20, 2022

PARENTS AS RARE - EPISODE 068Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim …

[Read more...]

What’s It Like Being A Research Patient with the UDN? Ted Perron Shares his Story

Oct 13, 2022

ENERGY IN ACTION - EPISODE 067What's It Like Being a Research Patient with UDN - Ted Will Tell You

In addition to …

[Read more...]

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Upcoming Events

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Jun 26
12:00 pm

Mito Weekly Support Call

Jul 2
6:00 pm

CPEO & Me

Jul 3
12:00 pm

CANCELED Mito Weekly Support Call

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Expert Series

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There are no upcoming events.

Last Presentation

Expert Series: Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails
Presented May 12, 2026

P.O. Box 310
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