MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Calendar of Events
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1 event,
Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment
Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment
Having a better understanding of what things are associated with LCHADD retinopathy can provide insight towards developing treatment. During this presentation, Dr. Gillingham will provide an update on the current results of a natural history study of 40 patients with LCHADD. She will also discuss what factors are associated with retinal structure and function, and […]
2 events,
Expert Series: Immune Cell Function in Mitochondrial Disease
Expert Series: Immune Cell Function in Mitochondrial Disease
Immune dysfunction is increasingly appreciated in mitochondrial disorders. Join Melissa Walker to review the small number of known immune manifestations of specific primary mitochondrial disorders as well as emerging studies on non-specific immune dysfunction in mitochondrial disease more broadly.
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
1 event,
Pennsylvania Virtual MitoSocial
Pennsylvania Virtual MitoSocial
If you live in Pennsylvania, join us for a virtual MitoSocial on Wednesday, November 8th to connect with others in your local community who share your story with mitochondrial disease. No matter where you are on your journey, you are welcome! Build you local circle of support!
1 event,
FAOD Monthly Evening Support Call
FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
2 events,
Maine Virtual MitoSocial
Maine Virtual MitoSocial
If you live in Maine, join us for a virtual MitoSocial on Tuesday, November 14th to connect with others in your local community who share your story with mitochondrial disease. No matter where you are on your journey, you are welcome! Build you local circle of support!
Our Space: A space for young adults with Mito and FAODs to connect and network
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […]
1 event,
MitoChampions Monthly Meeting
MitoChampions Monthly Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […]
1 event,
FAOD Monthly Afternoon Support Call
FAOD Monthly Afternoon Support Call
DUE TO THE HOLIDAY THIS MONTH'S CALL WILL BE ON NOVEMBER 16TH Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 4th Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and […]
1 event,
Thanksgiving
MitoAction wishes to extend our heartfelt thanks to our amazing mitochondrial disease community. It is an honor that you have entrusted us to walk with you on this journey, and we are forever grateful for every member of this community.
