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Patient Spotlight


Eric Harty Works His Magic with Metal

Paul Harty and Eric Harty are not only first cousins; they are friends. Eric looks up to Paul, who is older. Paul admires Eric’s artistic ability. They are both...


Counselors Lift up this Mito Camper

At summer camp, Stephen Nielsen is just one of the guys … telling jokes, talking with friends, fishing, boating, and doing archery. “Most kids just want to be seen...


This Daredevil Inspires His Team

BALTIMORE, MD —Charlie Bainbridge is a real daredevil. The Catonsville, MD, boy who is battling mitochondrial disease is the inspiration behind “Charlie B’s Daredevils,” a team of 22 walkers...


Brionna

1 girl + 1 community = big difference Brionna & family have right equation to raise awareness Never underestimate the power of one: one girl, one mom, one family,...


Brother with Mito Inspires Toy Design Project

Lincoln Ogonowski’s mitochondrial disease limits his mobility, so big brother Luke Krumich will often play with Lincoln’s toys for him. “I know what he likes and what he thinks...


Students Learn About Mito

Mitochondrial disease part of curriculum for Long Branch, NJ, seventh-graders The seventh-graders at Long Branch (NJ) Middle School know about mitochondrial disease thanks to a creative teacher. Science teacher...


Bride Raises Mito Awareness

The groom and groomsmen wore BowTie Cause MitoAction bowties. The bridesmaids wore green. Every guest got a MitoAction bracelet. Even the wedding invite was green and included the Mito...


Kayla West Uses Pageant Platform to Raise Mito Awareness

Kayla West’s cousins have mitochondrial disease. “I helped them feel like normal kids,” she said. “That’s what they wanted.” Kayla spent two years helping to take care of her...


Pennies From Heaven

Matthew Harty’s memory inspires donations. “There is no footprint too small to leave an imprint on this world.” Matthew Harty lost his battle with mitochondrial disease shortly after his...


Sweet 16

‘She’s a gift to everyone who knows her’ Ellie Kovalcik celebrates Sweet 16 Sweet 16. The Kovalcik family didn’t think they’d see this day. Ellie has Leigh’s disease, one...