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Patient Spotlight


Team Jess Commemorates Extraordinary Friend

After Jessica Gemayel lost her battle with mitochondrial disease a few months ago, her friends gathered to figure out what they could do in her memory. Courtney Brown, Jessica’s...


Victory Junction Allows Camper to Just be Normal

Lauren Petty uses an electric wheelchair because of balance issues. She has urinary and bowel incontinence. She’s had a g-tube for the last two years and recently got a...


“Sports Impossible”

10-year-old author focuses on what Mito kids can do “This book shows that even though children who have disabilities have their struggles, they can still do things in their...


Marquis Family Fighting for Little Miss Roo

DERRY, NH –Amy and Jason Marquis’ daughter was given a death sentence. Riley, also known as Little Miss Roo, has Leigh’s Disease, one of the most devastating forms of...


Cerrutis Craft a Way to Raise Mito Awareness

Every year, Rita Cerruti makes more than 300 mitochondrial disease awareness ribbons to hand out at the MitoAction Energy Walk & 5K. And every year, they are gone in...


On the Wings of Hope

Lori Jubinville of Chicopee, MA, was diagnosed with mitochondrial disease in June 2005. In September 2005, Lori and husband Mark attended the first MitoAction Energy Walk. This year, along...


Team Lissy Loo Creates Colorful Fundraiser

One little girl is using the colors of the rainbow to raise awareness about mitochondrial disease, the disorder that affects her. Alyssa Curley, the heart and soul of Team...


Walk Will be Emotional for New Mito Mom

Stephanie Deady is a little apprehensive about attending her first MitoAction Energy Walk & 5K. It’s been a whirlwind year since her son, Logan, was diagnosed with mitochondrial disease...


9-Year-Old Mito Warrior on a Mission

The Mito Warrior of Fultonville, NY, will be in Boston for his very first MitoAction Energy Walk & 5K this year and hopes to meet other kids just like...


Mito “Maine”-iacs Captain Feels Freedom at Walk

Health and family issues kept Sheridan Johnston from attending the last few MitoAction Energy Walks but this year a healthier Sheridan is rarin’ to go! Sheridan is thrilled to...